Posted 20 February 2008 - 12:09 AM
Posted 20 February 2008 - 03:11 AM
I know what you mean about the ups & downs of this strange illness, one moment I feel great & then it hits out of the blue & I have to stop everything to rest & get myself back together again. It is not easy when often you look fine on the outside but feel dreadful on the inside and people at work don't seem to understand.
My work certainly do not give me any understanding & expect you to be working on all full cylinders at all times!!!
Do you work full time? Is there chance of doing part time?
Thinking of you
Posted 20 February 2008 - 04:49 AM
Posted 20 February 2008 - 05:45 AM
Oh I know just what you are saying! Not that I would wish this disease on anyone, but for one day it would be nice if some family members, bosses and friends would have it. They'd finally get it!!!!
Posted 20 February 2008 - 11:25 AM
Sorry to hear you had such an awful day....I think you should moan all you want! After all, you have an endless supply of ears here that are ready and waiting for you!! Glad you got some rest at least and I hope tomorrow is even better for you!
Posted 20 February 2008 - 03:21 PM
Posted 21 February 2008 - 02:52 AM
i dont think your moaning at all,and if u were your intited to do and I think your a very brave and strong woman who goes to work, I just couldn't see myself doing half of what u do , as im bed ridden most of the time, its lack of knowledge and ignorance from the people around us who dont understand, maybe your boss could be more symaphetic and take a look and get to know about what your going tho, after all u work for her and she could understand a bit more, I dont mean her going and getting right into it in dephts but a little understanding could safe u a lot of energy trying to explain, my thoughts are with u warm hugs from jaxsx
(hope this makes sense sometimes I can't explain and write down the things I want to say it sometimes comes out googly dee goog)
Posted 21 February 2008 - 04:23 AM
I totally agree withjaxs... working and having our illnesses is very tough, for sure. As you intimated, folks who don't have knowledge about these illnesses... really have no idea "what is". And... the ups and downs make it even more difficult.
I get that completely... I can't even remeber the last time my entire body felt 100%... yet, for those who are braver than I, such as yourself, continue in the workforce, nevertheless.
I started withsymptoms in 1991, but couldn't work anymore... plus my rheumatologist insisted I stop working... 2 years before I actually did. !997 was 2 years after I finally got diagnosed... I simply couldn't do it anymore. I hurt so much, was tired all of the time and I felt like I was climbing a mountain constantly
So, Lyndylou... please take care of yourself.
Big, soft hugs...