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What I have been told, up to this point


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#1 debonair susie

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Posted 20 February 2008 - 01:37 PM

The lab results the endo's nurse called withon Feb 6: My PTH is 92 when it s/b between 12-65; my AGHD is 79, when it s/b between 87-238; the "meno" number is 90 which is between the meno numbers 21-153.

I'm to take 500mg 2X/day, so I got Oscal. A re-check is to be done after I've been taking calcium for awhile. I'm to see my internist about getting me on an HRT... my previous internist felt I should try to "tough it, without HRT... I'm not sure what to think about this... to take, or not to take. Any who have experience this... good/bad results?

This feels almost like the day I was diagnosed withSclero :( ... I don't have first-hand experience withany of the above three things... other than having been going through, what feels like 50 years already under my belt withthe "Big Meno" :blink:

I have an app't w/ the endo, only not until March 27... he's that good.
There's also talk withboth the endo and ENT... that it might be good to aspirate the smaller nodule on the left side of my thyroid... Until they became aware of it via the ultrasound, I never even knew it was there, it's that small. The larger goiter.. on the right side turned out benign and it's said that it isn't interfering withmy swallowing. The ENT said that there is extensive damage to my esophagus, but I hope to get his report, as well as the Endo's reports, so I can go over it all before my
app't(s).

Thanks for any help you can give.
Hugs, Susie
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Susie Kraft
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#2 janey

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Posted 20 February 2008 - 04:08 PM

You need some really (((((((((((((((((((((BIG HUGS)))))))))))))))))))))) today.
That was a lot of information for one day. I honestly don't know about any of the numbers you talked about in the first paragraph because I've never had problems with the endocrine system so no testing there. Are these numbers good, mild, moderate?

I've never been on HRT and my current rheumatologist doesn't want me on them. Some people do well with them and other don't. Please discuss this over with the doctors. It may be worth a try if it makes you feel better and helps with your symptoms. So glad the goiter was benign.

Please keep us informed sweetheart.

Big Hugs to you,
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#3 bookworm

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Posted 20 February 2008 - 10:12 PM

I 've been away for a few days and I don't know what all those numbers mean, either, but I am on hormone replacement therapy and I feel like a new woman on it! I have the lowest dose patch of any of them, but it's enough to stop the terrible hot flashes I was having. Both my gynocologist and my rheumatologist urged me to take hormones or use a hormone patch but I was sort of resistant. My gynocologist says they are not only good for stopping or preventing hot flashes, but they also help keep bones strong, help one's mood, are good for the heart, and I've forgotten what all. He really loves them.
I hope this helps shed some light.

Mary in Texas

#4 debonair susie

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Posted 21 February 2008 - 05:03 AM

Thank you, Janey... I really appreciate the BIG HUGS you sent to me... a person can never have too many of those.
As for the numbers... Apparently they are noteworthy, because the dr wanted me called and attention given to each.
Having not actually visited withhim yet, I'm sure I'll know more, once I see him. Also, getting more labs (re-takes) will be more telling. I started on Oscal only yesterday, so I'm going to ask that the labs be re-scheduled, so as to allow my system time withthe calcium regimen he now has me on. She had told me the labs would be 5 wks out, yet set them up for Feb 25th.

I AM concerned about being HRT, but as you suggested, I'll go over that withthe doctors.

I will keep you up on what's happening. Thanks a bunch, Janey!

Hugs, Susie
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Susie Kraft
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#5 debonair susie

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Posted 21 February 2008 - 05:08 AM

Hi Mary and thanks for sharing your experience withthe HRT patch... That's very reassuring information, believe me!
Hopefully, I can feel better as you have been, should the patch be the chosen route. I would LOVE to be rid of the very things you named off... the hot flashes, bone health support, mood improvement, etc...... sounds really good to me!

Thank you... I feel there's hope now!
Susie
Special Hugs,

Susie Kraft
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International Scleroderma Network (ISN)