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21 replies to this topic

#21 anotherday

anotherday

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Posted 21 April 2012 - 05:03 PM

Hi, everybody!

Your replies made me so glad!
Sometimes it's hard to have a rare disease, most of people don't understand; my husband is the only person who really knows what I'm passing through, but sometimes I don't like to talk so much of what I'm feeling because I know he suffers too.
Here I feel so comfortable, I love to read all your stories.

Thank you all!

Hugs

Ro

#22 Amanda Thorpe

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Posted 22 April 2012 - 12:59 AM

Hello Ro

Maybe you might want to submit your story to our collection of over 1000 stories from people, caregivers and survivors about their experience of scleroderma and related illnesses. Not only is it cathartic to write your story but uplifting and inspiring to those that read it. Your husband could submit his story as well as a way of release.
That's how I got involved with ISN really, reading the stories and then submitting mine, the forums came after that.

Of course you don't have to do any such thing!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)