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Welcome all newbies!

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11 replies to this topic

#1 LisaBulman


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Posted 24 February 2008 - 04:24 AM

Welcome to the Sclero Forums!

There are more new people on here everyday and it is very difficult to welcome each and every one of you personally. I have read your posts and just wanted to formally welcome you to our forum. As you can see you have found a great place for support, information and friendship. If you haven't already posted, please do so, we don't bite! For those of you who have posted, keep on posting!

If you are looking for more information on scleroderma and other related information you can visit our website at www.sclero.org.

Lisa Bulman
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International Scleroderma Network (ISN)

#2 Fictionite


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Posted 24 February 2008 - 03:22 PM

Thanks for the welcome. I have actually been reading posts since last October, so I feel like I already know most of you, even though I haven't posted. I have learned so much through the forum and on the website over the last few months. I'm glad that I finally registered so that I can participate and "talk" with everyone.

As I have read so many times... It's wonderfully comforting to know that I'm not alone.


#3 janey


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Posted 24 February 2008 - 06:21 PM

I'd like to join Lisa with a warm welcome to all new members. It's been hard keeping up with all the new members with all the activity on the board. It's wonderful to see so many people who need this site are actually finding it and using it. We all have experiences to share and things to learn from each other. It's a great group - lots of support, experiences and knowledge.

Welcome Fictionite and ALL new members. Thanks to all members for making this such a great place for so many people.

Big Hugs,
Janey Willis
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International Scleroderma Network (ISN)

#4 jefa


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Posted 24 February 2008 - 10:30 PM

Thanks Lisa for posting this - I sometimes have trouble remembering whether I have responded to each and every new person. I do read all of the posts and get so familiar with them I sometimes think I have responded when I do not. It is nice to see names I recognise from the registration process finally posting, too.

As Fictionite says, it is comforting to know that you are not alone in all this. I am glad each of you has decided to join us and I look forward to getting to know you all better through the Forums. Hugs to you all.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#5 Sweet


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Posted 25 February 2008 - 01:52 PM

Hi Fictionite!

Welcome to the Sclero Forums. You will love it here! I look forward to knowing you better.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#6 Michelle2


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Posted 26 February 2008 - 11:00 AM

Welcome Newbies~

We are glad you found us. We are a great group that shares our thought, experiences and trials. We have a lot of compassion and show tremendous caring. Please don't be shy, no question, comment or concern is silly. Just remember "your" not alone.

Hugs to all!
Take care and stay warm,


#7 Snowbird


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Posted 26 February 2008 - 11:38 AM

Yes, I think it's nice to meet all of you newbies too (from another newbie!)...
Sending good wishes your way!

#8 Guest_missy1_*

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Posted 19 March 2008 - 11:55 AM

I am new to this, so I was not sure where to post to introduce myself and ask for input? I hope this is ok! My name is Missy. I am in the process of being tentatively diagnosed with scleroderma or lupus or RA! I have a positive ANA with centromere pattern, multiple joint arthritis, raynauds and some minimal reflux. I have no obvious skin involvement. I am just starting today on a pred pack to quickly help with some pain I have been having recently. Do you have to have the skin findings in order to definately have Scleroderma? Thanks for any help or input!

#9 barefut


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Posted 19 March 2008 - 05:45 PM

Hi Missy,

Welcome! You have come to the right place for good, reliable information and warm, friendly support. As I understand, you do not have to have skin involvement to have a sclero diagnosis but don't quote me :rolleyes: I'm sure a support specialist will point you to some good links.

I hope you are happy with your doctors and you find out something definite soon. I remember how frustrating it was going for years with all these weird symptoms and not having a diagnosis.

Take care, stay warm and keep in touch.


Welcome to all the new members I have not gotten to "meet" with yet. There are so many of you ! That's so great! :)

#10 Guest_SADIE_*

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Posted 20 March 2008 - 10:34 AM

Welcome to the club!! This is a great place!!

#11 WestCoast1


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Posted 20 March 2008 - 05:13 PM

Welcome Missy, I am glad that you posted. I am sorry that you are having pain lately...I hope that the Predn. helps. Scleroderma is diagnosed on a case by case basis, but there are things that the doctors look for and changes to keep an eye on. your rheumatologist would be the one to diagnose this illness. Please keep us informed as to how you are doing.


#12 peanut


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Posted 20 March 2008 - 09:07 PM

* * WELCOME * * I'm so glad you've found us. I hope you take the time to learn, research and ask questions. I also recommend maintaining a library of your test results and tests. I have a horrible memory, so I also keep a brief journal of symptoms, my doctor appts, etc. This way I know when I remember exactly when I can give my doctor an exact date when they ask the infamous question: so when did this first start... uhh... I dunno.


You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...