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Facial Changes?


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14 replies to this topic

#1 mando621

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Posted 27 February 2008 - 03:42 AM

Hi,

I got to thinking about my face today - major issues with breakouts that are driving me nuts.

My nose has been feeling funny for the last few years. I actually feel tingling and numbness (can you feel numbness :lol: ) in the tip of my nose.

Looking back at old pictures of myself, my nose has changed shape fairly drastically from what it was like. It is thinner and more pointy than it used to be. I can actually see the cartilage more clearly at the end of my nose. Is this a change typical of Scleroderma?

Can you loose weight in your nose? I've been thin all my life. In college was my skinniest and my nose is more full on my college ID from senior year.

Am I looking for trouble here? Anyone else have changes similar?

I see more furrowing around my mouth, but is that normal for a 44 year old?

Going crazy .... :wacko:

#2 Sweet

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Posted 27 February 2008 - 05:30 AM

Yes, you can feel numbness, well the tingling part of it anyway.

I have never heard of anyones nose changing, but that doesn't mean it can't happen. My mouth has definitely changed some however. I think our faces change more than we want to admit as we get older. I am seeing more of my mother in my now than I ever thought I would.
Warm and gentle hugs,

Pamela
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#3 scampie5

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Posted 27 February 2008 - 05:38 AM

Hi my face has changed quite a bit my mouth is smaller and my nose has also changed I have no lines on my face know and im 50 this year but no one believes me when I tell them this Lynn

#4 rlbrussell

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Posted 27 February 2008 - 07:43 AM

My face has changed a lot too. My nose is very thin, pointy, and you can see all of the cartilaginous structures. My mouth has also changed drastically. Unfortunately, for me the changes happened in less then 2 years. I hate it and often feel like I look scary.
Rosa
Diffuse Sclero
dx Jan 2006

#5 debonair susie

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Posted 27 February 2008 - 08:02 AM

Mando, Rosa, Pam ... Everyone...

I've definitely noticed extreme structure changes in regard to my nose... in the same way your nose has changed, Mando. My nose would not have looked this way, as my folks' noses were not this way at all! :rolleyes:
I have the feathery wrinkles around my mouth... the microstomia :blink:
I feel these changes are due to the Sclero!... Just my two cents worth!lol

Hugs, Susie
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#6 peanut

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Posted 27 February 2008 - 04:47 PM

My nose has definitely become more slender over the years. I notice that for some scleros like me we definitely have a certain look.. slender nose, tight skin and mostly tan. I was at a meeting meeting for PH. I scanned the room and saw a lady with this description and said to myself I be she has sclero and she did...

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#7 Sheryl

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Posted 27 February 2008 - 05:36 PM

Mando, I did get the furrowing around my mouth right away. That was one of my first visual signs that something strange was happening to my face. Sheryl
Strength and Warmth,
Sheryl

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#8 Vee

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Posted 28 February 2008 - 04:28 AM

Yes it is all sclero related. I believe it has to do with the shortening and tightening in the tendons and underlying layers of the skin. Our skin eventually softens back up, but the underlying damage is done. My nose, too, is very thin. I feel like I've had a close pin on it for a couple of years. :blink: And the purse string mouth is also evidence of dear ole sclero. I think that's the thing that bothers me most. It makes me look like a chain smoker and I'm not! I've thought of getting ristelyn (sp?) injectiions, but who has that kind of money? Not me!! So I just smile a lot to hide them.

How come my body hasn't gotten any skinnier? Hmmmm.....seems kind of cruel! ;)
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#9 peanut

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Posted 28 February 2008 - 05:16 AM

I agree with you Vee...
Why don't the tendons around my belly shrink? And my bum too...

LOL

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#10 debonair susie

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Posted 28 February 2008 - 08:07 AM

Vee and peanut... I want to be on YOUR team... bum. tum and anything else that's got more than I need! ;)

Hugs,
Susie
Special Hugs,

Susie Kraft
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#11 SpaceysChick

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Posted 01 March 2008 - 10:21 AM

hey mando,

i haven't noticed my nose... but I do know that my mouth is much smaller than it used to be, and my tongue is shorter... I know that sounds weird and probably is a little too much information... but I use to be able to touch my nose with the tip of my tongue, and can't do that anymore. Don't know if that is cause of age, or this disease...

Hope your having a nice day!

#12 Susannah

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Posted 01 March 2008 - 10:42 AM

Hi everyone
I definately notice a difference with my face and nose like you all are describing and SpaceyChick, along with a smallermouth, my tongue too is shorter, I can no where near poke it out as far as I used to. I could never touch the end of my nose with it like all the kids at school :( lol, but know for sure it is shorter and stumpier. I can't lick around my mouth to catch drips from food and drinks or to just moisten my lips when they get dry.
Take care all
susannah x

#13 Vee

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Posted 01 March 2008 - 01:45 PM

LOL, I used to be able to touch my nose too. Now I can't even get stuck food out from between my cheek and teeth! I just had a cracked tooth, too. My dentist could barely get into my mouth to fix it! She said my mouth is getting tighter than last time Iwas in. My wrists and ankles have gotten really skinny too. So why not the rest? I still don't get it!

Oh well. I'll take what I can get!

Happy to all! :P
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#14 chekhers4art

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Posted 01 March 2008 - 05:44 PM

Hi, I'm one of the newbies. I think my nose is changing. the nasil creases are deepening. My upper lip is disapearing. I've just recently been diagnosed..not that the symptoms are new. A couple months ago my breast nipple went totally white. Anyone had that? I have pulomary hypertension but I don't think that would be the cause and I am going on 60 and definately no nursing a baby. :o

#15 Shelley Ensz

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Posted 01 March 2008 - 11:32 PM

Hi Checkers4art,

Welcome to Sclero Forums!

As it happens, Raynaud's can occur anywhere on the body, including the nipples. This is very painful for nursing mothers, of course, but it can also affect anyone, male or female, of any age.

See Raynaud's of the Nipple on our main site at:
http://www.sclero.or...o-z.html#nipple

You may want to discuss this with your doctor, to see if this is the cause in your particular case.
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.