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In my Nose?


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#1 Fictionite

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Posted 27 February 2008 - 09:57 AM

Hi, Fellow Warriors.

I have a condition that I haven't yet read about from any of you. I just saw an ENT for chronic sinusitis, and he informed me that I do not have a sinus infection, nor do I have an ear infection. He thinks my sclero is causing swelling in my sinuses and that it just "feels" like allergies or an infection. Hmmm. It might be a "fake" infection, but the constant headache and ear pain is quite real.

He determined his diagnosis by taking a teeny, tiny camera attached with a cord and ran it up one of my nostrils until it ended up in the back of my throat. I hope he memorized the image, because he will NEVER do that to me again. My poor snout! Anyway, there is no drainage - only redness and swelling, which feels like pressure, which feels like allergies. OK. I told him that one of my bazillion tests last fall included a sinus swab, and the results showed a high eosinophil count. (I'm told this means swelling, scar tissue and/or hardening of the affected organ or area.) That seemed to convince him that he was right.

Soooo, does anyone else have this unusual sinus swelling? If so, how is it treated? He prescribed Flonase, which has helped with the nasal inflammation, but not the pain. I know this isn't the most serious of concerns; however, it would be nice to have a break from the daily headaches that make me oh, so cranky.

Thanks,
Fictionite

#2 peanut

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Posted 27 February 2008 - 11:15 AM

Fictionite,
A camera up your nose? Yikes.
No good. I'm sorry your nose has inflammation.
Do those nasal rinse pots help?
Flax seed & Omega-3 are supplements that have ant inflammatory properties.

hearts,
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#3 Sweet

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Posted 27 February 2008 - 11:48 AM

Wow, first of all I have to say I'm sorry about the camera up your nose, but you made me laugh out loud when you said "I hope he memorized the image, because he will NEVER do that to me again" :lol:

I have had this same problem for years and yet never related it to sclero nor thought to mention it to my doctor. I certainly will this next visit. I don't have pain, but do have inflammation. I've had to start using a Netti pot last year. If I don't use it on a regular basis, I get a sinus infection.
Warm and gentle hugs,

Pamela
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#4 kelowna52

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Posted 27 February 2008 - 12:47 PM

Hello to everyone, I have had the sinus problems all along. Actually this past week I've been feeling really bad. I assumed it was because spring was in the air. I use Nasonex nose spray, plus I use Mucinex, you can buy it over the counter. It works quite well for the post nasal drip. I guess it must have something to do with the Scleroderma, who knows? I had my first Botox injections for my migraines and so far no headache, that was about 3 weeks ago. My Neouro doctor. told me I would probably have the injections in 3 month's again. If it works I have no problems with it. I have had one side affect from the Botox though, I told my husband, I look like Jack Nicholson on TV, he laughed. I bit of wrinkling around the eyes, apparantly that does wear off. Sorry about the camera up the nose, I've had that done as well, I know it's not a fun thing. Take care.

Jackie S.

#5 debonair susie

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Posted 27 February 2008 - 01:49 PM

Oh Fictionite... yess... I had the "displeasure" of the same examination, LAST week! It wasn't a bit fun, but he did it not only ONCE, but TWICE! I'm just glad I let him know I have a gag reflex, because he numbed the "path" prior to the exam. Doesn't sound like you had the numbing :o MY exam was to check out my vocal cords (It felt like he probably saw my belly button, too)!lol

I have a question... How long has this problem given you trouble? Does it come on often? Have you been given antibiotics for it?
Do you have pain in the "sinus area? Does the pain travel down the side(s) of your face?

Thanks, Susie
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#6 Piper

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Posted 27 February 2008 - 02:10 PM

Hi, I've had constant post nasal drip and sinusitis off and on for years. I've found that if I use the nasonex soon enough when it starts up I don't end up with a full blown infection. I thought mine might have something to do with the dry eyes, mouth and swollen parotid glands.
Hugs, Piper

#7 Buttons

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Posted 28 February 2008 - 12:57 AM

I have read with interest your post Fictionite because I have had problems with sinusitis for about 2 years and I take Nasonex nose spray every day along with a saline nasal spay after consultant(immunologist) said it was linked to my dry eyes & mouth (he prescribed the meds & told me to use the saline spray, this you can buy over the counter at pharmacy). I did get frequent headaches but since using the sprays they have gone.
Hope you get rid of the headaches soon

Jenuse

#8 Sweet

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Posted 28 February 2008 - 06:09 AM

Jackie,

I'm so glad that it appears the Botox is helping your headaches. Erin, maybe you should try that!
Warm and gentle hugs,

Pamela
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#9 Fictionite

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Posted 28 February 2008 - 06:38 AM

You mean he could have numbed my sinuses to make this easier?!!! Now, I'm really "snorting" upset.

I have had sinus problems for the last five years -- even had a surgery -- but, I lived in Kansas during that time, which is one of the worst places you can live if you're an allergy sufferer. I moved to New Mexico this past November and thought that I would not have to deal with those problems ever again. This current sinus problem started early last month. I did have two different antibiotics and neither worked. (I now recall several sinus infections in the last few years that never responded to antibiotics.) When I complained that I still wasn't better after almost six weeks, I was referred to the ENT.

I will say that now that I have used the Flonase for a few days that the pain has diminished quite a bit. I was using Nasacort AQ, but that wasn't working for me like the Flonase does. I guess there is more steroid content in the Flonase?

I will say that since my original post and reading all of your replies, I have thought more about my nose. I realize now that what I thought was nasal congestion many times was really just inflammation. I don't feel stuffed up. It feels more like pressure and that my nose has closed up to where it feels like only a pinch of air can get through. Does that make sense?

Anyway, thanks for responding. You all make me smile every day, and I appreciate your help. ~Fic

#10 debonair susie

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Posted 28 February 2008 - 07:42 AM

The reason I asked the questions I did... is because my dr ALSO thought my problmes were due to sinus problems.
In my case, however... this went on for 2 years, before she realized it might be something else.
She pressed on the areas of my sinuses, asking if it hurt. When I said no, she said, this is Trigeminal Neuralgia, not sinus problems! The problem effects only one side of my face along the trigeminal nerve and the medication she prescribed for me alleviates the pain.

I'm certainly not suggesting this is your problem, but I believe that this problem can easily be overlooked or difficult to diagnose.

I'm glad to hear that you're getting relief from Flonase. anytime it's dry air, these can be problems for us!

Hugs, Fictionite!
Susie
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Susie Kraft
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