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#1 LIZ2



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Posted 28 February 2008 - 05:29 PM

I had a lesion removed which was part of the lichen sclerosis. The surgical wound was inside one of the buttocks cheeks, an area I was unable to see and care for. Because of its location, it was subject to abrasion. I eventually got wound care from a clinic specializing in wound care. When the wound was no longer open, I was discharged and advised to use a moisture barrier on it and to not sit for longer than 20 minutes at a time.

After a month of diligently following those guidelines, I thought the wound was pretty much healed since there was no longer any pain. I began sitting for longer periods and not using the moisture barrier cream as frequently. Within about a week, the wound was so painful and raw that I now have to sit on a donut cushion and position the wound over the donut opening.

Have others had experience with a surgical wound in the lichen sclerosis area and how long did it take to completely heal? Are there any ongoing precautions or procedures because of the kind of lesion or the area where the lesion/wound are located? Can I ever look forward to complete healing and no pain in the wound area?

#2 janey


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Posted 29 February 2008 - 04:03 AM

I'm so sorry to read about the problems you are having with your wound being able to heal. First of all, you really need to make your doctor aware of it. He might want to try another treatment. We recently posted an article on the effectiveness of Hyberbaric Oxygen Chamber in the treatment of stubborn digital ulcers; however, there are other studies that show its general effectiveness with various types of wounds. This might be something you discuss with your doctor. We also have a couple of articles on treatments for Lichen Sclerorsis.

I personally have no experience with this so I can't testify to anything really being able to work for you. It does sounds like another type of treatments might be in order to help better heal your wound. Please keep us informed on how you are doing.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)