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Diets and Supplements


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#1 jefa

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Posted 04 March 2008 - 08:46 AM

From Supplements and Scleroderma

Systemic scleroderma patients should always consult their doctor(s), especially their rheumatologist, before using any vitamin or herbal remedies or making any significant changes in their diet.

In general, most doctors recommend that scleroderma patients follow a normal, well-balanced diet, without the addition of any herbs, vitamins, or minerals. Do not cut out any food groups from your diet, nor go on any "cleansing" diets, since this may accelerate the disease process.

The immune system does not need to be improved in scleroderma, because it is already overactive (and not underactive, as in AIDS.) Doing things that enhance the immune system can actually make scleroderma worse in some cases, as it gives the body more power to attack itself.Research shows that Raynaud's can cause an abnormal processing of certain vitamins and minerals, leading to worsening scleroderma. So excessive intake of any vitamin is to be avoided. (Also see: Raynaud's)Many herbs and over-the-counter medications can interact with prescription medications, and many of them make scleroderma symptoms worse. Even simple over-the-counter cold remedies often have ingredients that can trigger Raynaud's or heartburn in systemic scleroderma patients. (Also see: 
Heartburn.) Don't go on any diets that eliminate food groups, and especially avoid high-protein diets because they are very hard on the kidneys. (Also see: Kidney Involvement)


Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#2 peanut

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Posted 04 March 2008 - 01:07 PM

Thanks for the reminder Carrie.

 

Sometimes I find it confusing that doctors and research vary in opinion. For example, I know some people's doctors say don't take vit C, where my rheumatologist says its okay just don't take excess.

Hum... maybe its like eggs. Several years ago a report was released that said eggs are bad. Then, a year later eggs are good. And this year? We just don't care any more. LOL

peanut



You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#3 ladyhawke

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Posted 04 March 2008 - 03:14 PM

Hey Peanut....what is the reason behind not taking the vitamin C? I always double up on it and now have tripled it because of a cold I'm getting.....maybe I shouldn't be doing that.....Lisa
Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

#4 peanut

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Posted 04 March 2008 - 03:26 PM

I dunno...

 

I've read that vitamin C increases collagen production which is something we don't want, or it boosts the immune system in the bad kinda way... I'm not sure what the truth is but I'm sticking with what my rheumatologist says cause he knows me best.

peanut



You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#5 Sweet

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Posted 05 March 2008 - 05:55 AM

Ya, you got it Peanut, it's the collagen production. My rheumatologist has no problem with it however.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)