Posted 07 March 2008 - 09:14 AM
Can someone e-mail me that has gone through this, is this normal to be more out of breath?
Why should I have 1 more, I feel horrible on the third day, anyone else miss work cause of this
Posted 07 March 2008 - 10:58 AM
I don't know about being short of breath. I do know that with every treatment the next becomes harder on your body. Maybe you're coming down with something or spring asthma?
ILD is a mix of inflammation and scar tissue in your lungs. X-rays and CT scans cannot differentiate between the two so its impossible to tell how much of each you have in your lungs. Inflammation can go away where scar tissue is permanent damage. The hope is that it is mostly inflammation and that with treatment the inflammation will dissipate.
When I was working I called in the next day after my cytoxan whether I needed it or not just so I could stay in good health. But each of our bodies are different and we all process this awful chemical differently. Maybe yours needs rest.
You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...
Posted 10 March 2008 - 03:11 AM
Posted 10 March 2008 - 03:37 AM
I went through 5 cytoxan treatments. I had to stop short because my liver couldn't handle it. I was under the impression that the cytoxan would not improve my lungs but hold it steady. It did, for about a year and a half then my symptoms really came back and I was in the hospital for a few days because I could barely take a breath. Hopefully the cytoxan will help your lungs from getting worse.
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Posted 10 March 2008 - 02:17 PM