Posted 08 March 2008 - 01:55 PM
Posted 08 March 2008 - 04:48 PM
My 7 year old has been on Plaquenil for 2 1/2 years now. She never complained of fatigue or pain before she started taking it, so I just figure she's on it to halt the progression of her linear scleroderma. Her rheumatologist did suggest taking her off of the Plaquenil at her last appointment in January, but I am terrified that she will regress OR progress in her illness. We are going to a scleroderma specialist in New York in 2 weeks (we are in southern California), and I plan on getting his opinion before we decide to take her off of it. I do know that other people on this site have not done so well when they went off of their Plaquenil, but we know this crazy illness affects everyone differently.
Posted 08 March 2008 - 05:56 PM
Posted 09 March 2008 - 01:29 AM
Gareth hasn't even been on it a year yet, and I have talked to his rheumatologist about 'when do we taper it off' since he is doing so well now. She said that as long as he has no negative side affects, that we don't taper it off. It is something that he will always be on.....as long as it continues to work. Plaquenil 'jump starts the immmune system' I was told and he needs that boost.
Take care, Everyone.
Posted 09 March 2008 - 04:21 AM
Posted 10 March 2008 - 01:44 AM
Posted 11 March 2008 - 03:58 AM
I've been on Plaquenil for about a year now. I haven't noticed any side effect but I was told to make sure that I get an eye exam every year. I have my yearly eye exam at the end of the month. I really haven't noticed anything different with my vision.