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Lung Pain


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#1 peanut

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Posted 09 March 2008 - 03:51 AM

Hey, :(
So yesterday my upper right lung started hurting, like maybe 3-4 inches under my arm pit so I took some Tylenol. The pain kinda went away so I took another and it finally all went away. I have to be careful cause I get sick if I take too much Tylenol. I woke up this morning and the pain has returned so I took 2 tylenol again (the max dose on the bottle) but the pain is only getting worse. I feel it when I breath, sit and it really hurts when I cough.

I'm afraid my lung is collapsing, so I paged the doctor on call this morning. He said he can't do anything and to go to the ER, but I don't trust the ER. 2 years ago, pre-diagnosis I went the the ER with a horrible cough and they said I had asthma even after 2 lung x-rays. They were wrong - I had ILD caused by sclero. I'm just nervous if I go there they'll tell me the wrong information again. So I'm hoping I can make it to Monday to get in with my lung doctor. I guess if I'm desperate I can go to Urgent Care.

Any thoughts on what it might be? Yes, I probably should go get it checked out but I really want to wait and be checked out by doctors I trust and not some greenie right out of Cracker Jack Doctor College.

pain in the peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#2 LisaBulman

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Posted 09 March 2008 - 05:12 AM

HI Peanut,
I would go to the ER anyway and have them page/call your dr if they need to. Don't wait because it could get worse and then you won't be able to explain what it going on!!

I went to the ER a few years back because everytime I swallowed I thought my chest was going to explode. It also felt like I had something stuck in my throat. The nurse, very impatient said, "you probably have strep." I insisted I didn't abd she rolled her eyes. Well she came back in and told me the test was negative and was shocked. The dr.'s station was right outside my room and I could see the dr talking to her and then looking at me. The nurses face dropped and she was shaking her head. The dr and nurse came in and she explained she had called my gastro (this was on a weekend) and explained my sclero and motility issues. They kept me, he came in and did a gastroscopy and fould I had an ulcer in my esophogus.

Please don't wait and don't let the dr.'s who don't know what they are doing scare you off!!!

Hugs,
Lisa

Please keep us posted.
Lisa Bulman
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#3 lizzie

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Posted 09 March 2008 - 06:03 AM

Hi Peanut , I agree with Lisa that you should get it checked out, It could be muscular in origin , which would hurt when you breath , cough etc but if it is due something such as pleurisy or pneumonia it is better to start treatment rather than wait.
hope you get it sorted soon
Lizzie

#4 bookworm

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Posted 09 March 2008 - 08:29 AM

Peanut,
I agree with the others. Go to the emergency room! I've had pleuracy and that sounds like how it felt, but it could be several things. I know what you mean about doctors not knowing what they're doing, but explain up front that you have sclero. That might at least alert them to the fact that they don't know much about it!

Mary in Texas

#5 debonair susie

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Posted 09 March 2008 - 08:30 AM

I hope that you can find out what's happening, peanut.

Lizzie brought up two thoughts... that you may have either pleurisy or pneumonia. If so, pleurisy is very painful and pneumonia needs treatment.

You've gotten good suggestions, so let's hope this isn't something you have to put up with for very long.

soft Hugs,
Susie
Special Hugs,

Susie Kraft
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#6 Sweet

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Posted 09 March 2008 - 11:18 AM

Oh Goodness Peanut, I'm worried about you.

It could be pleurisy have you ever had that? I know how you feel about the ER doctors, but I'm worried about you delaying treatment.

Give an update when you can.
Warm and gentle hugs,

Pamela
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#7 Snowbird

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Posted 09 March 2008 - 12:48 PM

Hey Peanut....I sure hope you're ok too......and Lisa has a good point...to bring your lung doctor's information and ask them to page him to discuss your problem with the doctor on call.

I wish you good luck with whatever you decide!
Sending good wishes your way!

#8 peanut

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Posted 09 March 2008 - 01:25 PM

Thank you my beautiful friends.

The pain did get worse so I went to ER. I was immediately checked in and given pain medication for the pain. After an EKG and contrast CT Scan they thankfully found nothing. I'd rather have nothing than something bad that could ruin my transplant. Maybe it's muscular? I was sent home with more pain killers. It still hurts when I cough but not as bad... weird.

It's just another scleroderma mystery.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#9 emmie

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Posted 09 March 2008 - 04:09 PM

Peanuts,

I'm very glad that nothing was found and that you are much more comfortable now. You should still let your regular pulmonary doctor in on this or will the hospital automatically send him/her the results of the CT scan and EKG? You might want to call to be sure. (Don't mean to be "bossy"--but I am, aren't I?)

Hope you have a restful, pain free night.

emmie

#10 omaeva

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Posted 09 March 2008 - 04:43 PM

I'm happy to hear that you were able to get that checked out.
Hopefully it was just some muscle soreness and nothing more serious than that.

#11 Susannah

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Posted 09 March 2008 - 09:10 PM

Im a bit late coming on here. But Im really, really glad you went and got it checked out and Im hoping too that nothing comes up that will get in the way of your transplant. Im looking forward to it with ya babe. Not long to go now a!
So rest up large
Susannah x

#12 LisaBulman

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Posted 10 March 2008 - 01:59 AM

Hi Peanut,
Better to be safe than sorry! I'm glad you went and hopefully you'll be feeling better soon! :)

Hugs,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
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International Scleroderma Network (ISN)