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What type of physician can best diagnose Scleroderma


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5 replies to this topic

#1 stevehassmer

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Posted 10 March 2008 - 05:51 AM

Hi everyone,

This is my first post....I have become concerned that my wife may have Scleroderma. She is about to turn 30 and has had Reynaud's type symptoms for quite some time (at least 10-15years). Lately she has had some other sclero-like symptoms only in her fingers (and only one hand). Some of these symptoms include swelling around the last knuckle, some redness, and a couple of weeks ago she had some red bumps on one of her fingers (again around the area below her nail).

She has seen a general practitioner and had some tests done for other things that came back negative. Does any one have any feedback about what type of specialist may best be able to diagnose Scleroderma if she has it? She is scheduled to see a dermatologist this Friday. Is this a good course of action?

Thanks for any advice you can give.

#2 jefa

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Posted 10 March 2008 - 07:23 AM

Hi, Steve, and welcome to the ISN Sclero Forums. I am sorry you and your wife suspect scleroderma, but you are on the right track seeing a dermatologist, who are often the first to diagnose scleroderma when there is skin involvement. Rheumatologists are the other doctors to see in these circumstances. Here is a link to our page on Scleroderma Experts which will give you more information on the subject.

Please get back to us after the appointment on Friday and let us know what was discussed. I look forward to hearing from you.


Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#3 Sweet

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Posted 10 March 2008 - 08:51 AM

Hi Steve,

Welcome to the Sclero forums. I'm so happy you have joined us to learn more about all of this in order to help you wife. Jefa gave you a great link in order to find the right doctor. We'll look forward to hearing how things are going.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 WestCoast1

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Posted 10 March 2008 - 10:29 AM

Hi Steve. Welcome to the Forums. It sounds like you have already reacieved some great info. I aggree that a rheumatologist can answer many of your questions...sometimes a dermatologist as well.

Best wishes on your next apt. These difficult times take time and support, it sounds like you are a great support to her!
*WestCoast*

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#5 truman

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Posted 10 March 2008 - 10:56 AM

Hi Steve:

My rheumatologist was the first to go on record with the diagnosis in August of last year for CREST. I did have blood test and diagnosis from general practitioner for as long as 16 years ago, and just refused to acknowledge it.

Again, my opinion, would be the rheumatologist. They do certain blood tests that general practitioner's do not do.

Linda

Hope all goes well.
Tru

It is what it is...........

#6 Susannah

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Posted 11 March 2008 - 09:59 AM

Welcome Steve, nice to have you here.
Its truly a wonderful thing for you men to be seeking help for your loved ones. It means so much to me when my husband is pro-active for me and is understanding and helpful and is always there at all my hospital visits and appointments. I know it will mean so much to your wife also!
Ive no better advice to give than what the other lovely ladies have given, so take care and we look forward to hearing how you got on.
Susannah x