Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


I'm a newbie!


  • Please log in to reply
11 replies to this topic

#1 Guest_SADIE_*

Guest_SADIE_*
  • Guests

Posted 10 March 2008 - 07:41 AM

Hi! My name is Sadie. I have had Diffuse SD for 18 years now. I am very excited to be a part of this message board!
Sadie

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,274 posts
  • Location:Minnesota

Posted 10 March 2008 - 08:46 AM

Hello Sadie,

And we're delighted to have you here! What things have you found to be helpful in coping with diffuse scleroderma for 18 years? For example, your favorite tips for dealing with fatigue or other symptoms?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 10 March 2008 - 08:48 AM

Hi Sadie,

Welcome to the Sclero Forums. We're delighted you have joined us. Wow you are truly a veteran, I'm sure that you can provide a lot of advice for many.

I look forward to knowing you better.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 10 March 2008 - 10:32 AM

Hi Sadie,
Welcome! I am sorry to hear of your diagnosis. I hope to learn more about you.
*WestCoast*

********

#5 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 10 March 2008 - 10:51 AM

Sadie hello It's Sam I believe I know you... Glad to see you joined.
Sam

#6 omaeva

omaeva

    Silver Member

  • Members
  • PipPipPipPip
  • 161 posts
  • Location:CA

Posted 10 March 2008 - 11:25 AM

Welcome!

#7 Guest_SADIE_*

Guest_SADIE_*
  • Guests

Posted 10 March 2008 - 11:46 AM

Yep, You do know me! How much snow did you guys get up in Toledo? We got 14 in. down here in Dayton.
Sadie

#8 Helen

Helen

    Silver Member

  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Australia

Posted 10 March 2008 - 02:08 PM

Hi Sadie

Welcome....Wow, 18yrs with Diffuse SD...I have only had it 2 years. Hopefully will be able to get some good tips on how to deal with this.
Looking forward to hearing more from you.

Helen

#9 Michelle2

Michelle2

    Silver Member

  • Members
  • PipPipPipPip
  • 160 posts
  • Location:San Diego, Ca

Posted 11 March 2008 - 03:43 AM

Hi Sadie!

Welcome aboard! Glad you found us!!!!
Take care and stay warm,

Michelle

#10 Guest_SADIE_*

Guest_SADIE_*
  • Guests

Posted 11 March 2008 - 09:01 AM

Thank you for your replies! You guys are so sweet! I look forward to getting to know you guys!
Sadie

#11 Susannah

Susannah

    Senior Bronze Member

  • Members
  • PipPipPip
  • 68 posts
  • Location:Blenheim, New Zealand

Posted 11 March 2008 - 09:54 AM

Hi Sadie
I too would like to welcome you, and look forward to hearing your experience of many years.
Im sure you'll be as glad as I am to have found these lovely people.
Susannah x

#12 SpaceysChick

SpaceysChick

    Senior Bronze Member

  • Members
  • PipPipPip
  • 48 posts
  • Location:Waddell, Arizona

Posted 13 March 2008 - 10:04 AM

Welcome!!!