Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Nausea after eating


  • Please log in to reply
6 replies to this topic

#1 LMS

LMS

    Bronze Member

  • Members
  • PipPip
  • 25 posts

Posted 10 March 2008 - 08:26 AM

Hi Everyone,
I am currently being worked up for CREST. I have a titre of 1:640 centromere pattern. I already have the R, and today I went to get an x ray of my hands which I believe will show the C (I have multiple hard nodules on the palm side of my hands). I believe the E is starting. For the past 3 weeks I seem to get nausea with the smallest amont of food and a lot of burbing. Is this the start of another set of symptoms? ;) Thanks


Loren

#2 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 10 March 2008 - 08:47 AM

Hi LMS,

It does sound that what you are experience could certainly be the beginning of E. That part of the disease is quite common amongst us all. Here is a link that discusses some of the problems that can take place with the Esophagus. I hope that it helps.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#3 truman

truman

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 10 March 2008 - 10:59 AM

Hi LMS:

I have been diagnosed with CREST. I do have the Raynaud's, also the calcifications but on my arm as opposed to hands. As far as the "E" part of it, I take Nexium, but to be honest, I think it's also due to the fact that I like a great deal of acidic foods.
Tru

It is what it is...........

#4 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 10 March 2008 - 11:17 AM

Hi, Loren. Can't remember whether I have welcomed you before, but one more hug can't hurt. Welcome and big hugs to you.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#5 GocartMoz

GocartMoz

    Silver Member

  • Members
  • PipPipPipPip
  • 164 posts
  • Location:Florida

Posted 11 March 2008 - 03:47 AM

Hi Loren,

I have diffuse scleroderma and this was one of the very early signs with me. I used to have a huge appetite and ate just about everything. However, rather suddently, I was unable to eat foods, even a small amount gave me nausea and I began to vomit regularly. At times I had to be placed on TPN or IV nutrition, although the chemo didn't help matters either in this regard. I ended up losing alot of weight. I have also found that Nexium has helped, although since my ins. co. won't pay for it, I have switched to Protonix, which I don't find helps as much. I also wake up regularly in the middle of the night coughing with an acidic mixture in my throat. Sucrulfate has helped this somewhat. My eating habits have changed dramatically. There are certain foods I just can't stomach anymore. You just kind of have to find what foods work for you and change your diet around. It is really an ongoing struggle. I have found that activia yogurts work for me, banannas and things of that nature. Breads, pizzA, red sauces and things like that I have alot of difficulty with. I have gone from eating steaks, burgers, PIZZA, big time italian dinners to yogurt, banannas, chicken, soup and eggs. I guess it is healthier eating, but I sure miss that stuff. You just have to keep testing and see what works for you. Good luck.

Dave

#6 Peggy

Peggy

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 635 posts
  • Location:Minnesota

Posted 11 March 2008 - 04:26 AM

I've been trying to stay away from things that will give me a terrible reflux in the middle of the night and then I have to be up all night after drinking this GI Cocktail to stop the burning. But just last night all we had was steak and rice and I was so nauseated all night it was terrible. I'm finding that eating anything at all leaves me nauseated. I also have to force myself to eat as I never am hungry and could easily go without eating. Before I thought it was from the chemo drug but I haven't been on that for some time now and still have it so I have no idea. It's just frustrating.

Warm hugs.

Peggy

#7 LMS

LMS

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 25 posts

Posted 11 March 2008 - 06:31 AM

Thanks Dave,

A big part of my diet consists of soup, small dry sandwiches and bananas. I do have some stored fat I can live off of in the meantime. :lol:

Loren