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#1 catherinechaos

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Posted 11 March 2008 - 01:01 AM

Hi, this is my first post. I've had scleroderma for about 12 years but for about the past 7 years have suffered with spots around my chin and a blotchy rash over the rest of my face.

I didn't connect it with the sclero and have tried a million things to get rid of it but it seems to get better if I sleep or get loads of rest.

Has anyone else got anything like this?

#2 Michelle2

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Posted 11 March 2008 - 03:52 AM

Welcome catherinechaosm~ You've come to the right place. I personally haven't had this happen to me, but I have read about this happening to others. I know that someone will be able to give you some insight about it. Just know that your not going thru this alone!
Take care and stay warm,

Michelle

#3 peanut

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Posted 11 March 2008 - 04:20 AM

Catherine,
Welcome!
I'm so glad you posted.
I'm sorry you have a rash. Have you mentioned this to your doctor? I have sensitive skin and I have learned that sometimes stress and even the weather can cause rashes. New creams, lotions or soaps may also be the culprit.

A few years back I had a dermatologist do a patch test on my back to see what I'm allergic to. He found I was allergic to 3 things and 3 more things if I get stressed.

Be kind to your skin and drink lots of water.
Take care,
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#4 catherinechaos

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Posted 11 March 2008 - 05:48 AM

Thanks for your replies - you're very welcoming. I've got an appointment with a dermatologist this afternoon but I still thought it was an allergy or something I was doing that was making it this way. It sounds like what you had peanut - was yours connected to the sclero or just one of those things?

#5 janey

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Posted 11 March 2008 - 06:46 AM

Welcome Catherine!
I do get spots (like a red rash) on my face when I'm stressed or not getting enough sleep. My husband uses it as a sign to tell me to back off of things and relax. This started about the time my initial symptoms started (in fact it was one of my initial symptoms) so I always associated it scleroderma. This disease is so different for everyone that we all experience different things. You should bring it to your doctor's attention just to make sure there isn't anything else going on.

Big Hugs,
Janey Willis
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International Scleroderma Network (ISN)

#6 Patty1

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Posted 11 March 2008 - 07:25 AM

Hi Catherine,
Welcome, you have found a good place to ask questions.l have found everyone here most helpful, and though I don't chime in alot, I check in a few times a week. It has saved my sanity more than once to know I am not alone, or imagining things.
I have what I think is the same kind of rash as you describe. I asked my Rhem. about it last month when I saw her, and she says it is Sclero related. I have had it for the last year. It showed up last winter, subsided a little last summer, but is back in full glory! It reminds me of when I was about 16 and had many pimple breakouts. It is around my nose/cheeks, and then extends down around my mouth and chin. It seems to get worse when I am stressed out and tired. My husband says it is "cute" and accentuates my freckles, but I am very self concious about it.
I try to keep my face clean without overdoing it, don't want my skin even drier than it is allready. I have tried pimple medications, and hydrocortisone cream, but nothing seems to clear it up. Guess it is just something else to have to put up with! Let us know what your doctor says. Take care, and welcome again!
Patty

#7 Guest_SADIE_*

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Posted 11 March 2008 - 09:24 AM

Welcome Cathrine! I'm a newbie too. This is a great place! I have red spots on my face, neck, arms and belly. They've been there for 5 years at least. I have had Diffuse SD for 18 years now. Theres so many things that go on with SD. One neat thing is that, I'll never have wrinkles.
Sadie

#8 peanut

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Posted 11 March 2008 - 11:29 AM

Yah know Catherine I don't know if my rashes are related to Scleroderma, but I bet it's all related back to inflammation and Sclero causes inflammation, so perhaps it is... It's just another one of those scleroderma mysteries. Actually I haven't gotten a rash in a long time because I've been religious about using simple, basic products with no scents like cetaphil and taking anti-inflammatories, such as Omega-3 and Flax Seed Oil.

Sadie... that's right we have dots but no wrinkles. I like that.

Good luck with the dermatologist. I don't have one but when I did he said - - - sometimes we doctors don't even know what's causing the rash. sometimes all we can do is treat it - - -

Hum I wonder what kinda picture I would get if I connected my dots...
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#9 Sweet

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Posted 11 March 2008 - 04:07 PM

Hi Catherine and welcome!

So glad you have joined us. I wonder if your spots are telangiectasia I have given you a link to review. I hope that helps.

Again, welcome!!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#10 MaryFanPhilly

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Posted 12 March 2008 - 02:00 PM

Hey Folks,
I too get yukky red spots which my doctor says are telangiectasias... sometimes they get kind of infected and eventually a tiny, nasty, white, very hard piece of something like a grain of sand comes out. I get them on my hands too. I always forget to ask my doctor if it's a calcium deposit or what. I am also on prednisone and I know one of the side effects is acne but I have lowered my dose and it doesn't seem to be that bad. I get very red very easily too. Then again I get white and blue too. Am wondering what other colors will appear. Our skin is so compromised in so many ways.
Hm..... dots or wrinkles? We should take a poll. Think I'll take the wrinkles! Thank goodness for cover-up.
Love, Mary
Diffuse sclero; diabetes; hypertension; GERD with Barrett's

#11 kellyA

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Posted 14 March 2008 - 12:12 PM

I woke up this morning with a buterfly rash aroud my nose and it seemed to have traveld down to my chin, I've been very stressed lately could be stress or cytoxan treatments, will mention it to the dr. next time I see her, Thank goodness for foundation......

Kelly A

#12 Artemis

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Posted 22 March 2008 - 01:03 PM

Hi,

I'm new to this forum. I have had CREST for 20 years, which has recently blown into Scleroderma. I have Teylangenisa (? spelling) - it stands for the T in CREST. I have these spots all over my body, even internally. These are broken capilleries. I've tried lazor, which has help some people but hasn't for me.. I hope yours is curable.

#13 Sweet

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Posted 22 March 2008 - 01:12 PM

Hi Artemis,

Welcome to the sclero forums. I'm glad you found us. 20 years! Wow, sounds like you could share a lot with us. I look forward to knowing you better.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)