To all who have Limited/Crest
Posted 11 March 2008 - 05:41 PM
I'm just wondering how many of you that have Limited/Crest Scleroderma that has either Pulmonary Hypertension or Interstitial Lung disease, and also whether one goes with the other?
Posted 12 March 2008 - 01:39 AM
I have Crest (minus the "C" so far), but the rest is full blown. I do have some interstitial lung disease, mild at this point. And they are now in the process of working me up to see if I have PH I have never had the right heart cath so many say is the gold standard to diagnosis pulmonary hypertension. I've had several echos thru the years and on one of themit states pulmonary hypertension, (and that was never followed up on) so we shall see. I changed to a new rheumatologist and my follow up with her is in May We shall see..........
Barbara aka relicmom1
Posted 12 March 2008 - 02:41 AM
At this point I don't have either. From what I understand one doesn't necessarily go with the other, but I might be mistaken. Have a good day!
Posted 12 March 2008 - 03:16 AM
Posted 14 March 2008 - 09:38 AM
Posted 16 March 2008 - 12:23 PM
Posted 16 March 2008 - 12:47 PM
I have mild versions of both ILD and PH. However, having one does not mean you will get the other. Here is some information on the correlation between pulmonary fibrosis and PAH.
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 17 March 2008 - 09:36 AM
I have Limited and currently don't have either. I haven't heard anything that supports that it goes along with either of those.
Posted 17 March 2008 - 11:30 PM
Posted 18 March 2008 - 08:19 AM