How many of you use a walker or wheel chair?
Posted 13 March 2008 - 12:03 PM
Posted 13 March 2008 - 05:46 PM
I don't use either, but did just get a very pretty cane. I haven't used it yet, but there have been a few times I could have used it. I'm still too embarrassed to use my disabled parking placard.
Posted 13 March 2008 - 06:05 PM
It is what it is...........
Posted 13 March 2008 - 10:41 PM
Pam, there is no reason to be embarrassed about the placard!
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Posted 14 March 2008 - 01:34 AM
My son, Gareth (19 years old), uses his wheelchair all the time whenever we have long distances to travel.....big box stores, malls, airports, etc. He needed it 5 years ago before and after hip surgery and started using it again about 18 months ago after the sclero hit because he "gets so tired" walking. He also has the handicapped placard (from 5 years ag) and we just recently got it updated. I don't feel the least bit guilty using it for him.
Take care, Everyone.
Posted 14 March 2008 - 01:59 AM
You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...
Posted 14 March 2008 - 05:47 AM
Guest_Jude the Grouch_*
Posted 14 March 2008 - 06:30 AM
I find it quite helpful. It keeps me from falling. I use it all over the house as well as when I go places outside my home. And, an added bonus: I am on oxygen and trying to make sure my tubing doesn't get tangled on things and trying to carry things around the house can be a hassle. I can put things on the rollator seat and just wheel them around. Neatoi!
Posted 14 March 2008 - 07:48 AM
Posted 14 March 2008 - 12:42 PM
How did you get your disabled parking placard?
Posted 14 March 2008 - 02:02 PM
There is a form you can print from the Department of Licensing website. I gave it to my doctor, he filled it out and sent it in. Within a week I had it. Each state may be a bit different.
Posted 14 March 2008 - 03:59 PM
It is what it is...........
Posted 14 March 2008 - 08:08 PM
Mary in Texas
Posted 15 March 2008 - 12:06 AM
Posted 15 March 2008 - 04:45 AM
That's not a weird question at all. I started using a wheelchair about a year ago. My muscles and joints are pretty badly affected plus I get very short of breath. Walking around a supermarket holding on to a cart for a short while is about all I can do, so if we go to a museum, or a mall or have any amount of walking to do, I use the wheelchair. It took my sons awhile to figure out how not to run into people or play throw momma from the wheelchair!
The handicap placard is such a help especially in cold weather or even hot sunny days when being in the sun is too dangerous even for a short time. Even if you don't use it all the time, it's important to have. As far as the dirty looks go, too bad. Susannah, if anybody says anything, tell them you're blind, lol... I also have a 'cure scleroderma' magnet on my car so I can always point to it if I have to.
I have a good story for you all. Last year I had a fainting episode and ended up in the hospital. All the doctors could come up with was that I had a bad Raynaud's attack which put me into a serious spasm and caused me to black out.. it happened on the way to a doctor's appointment on a day which was extremely cold, well below freezing. So very cold weather can be very dangerous if you have severe Raynaud's (like we didn't know that.) I just never realized it could make you black out.
Anyhow a few days after I left the hospital, I flew out to California to spend some time in warmer weather at my best friend's house. When my son dropped me off at the airport it was 17 degrees outside. And the line for security was OUTSIDE. My son was very concerned, so I took out my disabled card that comes with the placard and the skycaps took me to the front of the line.
Well, mayhem broke loose and people started screaming at me. I mean SCREAMING. If they had rotten tomatoes they would have thrown them. I was shocked! I tried telling them that I had just come out of the hospital but they kept screaming at me. I wasn't about to stand out there arguing. Soooo, I did the walk of shame and went into the airport, into the bathroom and had a good cry. So I feel your pain Susannah. I had no reason to be embarrassed or humiliated but I'd never been in a situation like that before. We didn't cause our disease! We didn't ask for these problems! Ignorant people are ignorant and that will not change, only our reaction to them can...
After giving it some thought, I have an answer if it ever happens again. I would say 'you do realize that some disabilities are not visible. Be grateful that you do not have one of them. I have a disease called Scleroderma, and I will be happy to give you information about it if you are interested.'
Not only do I not look 'disabled' I actually look great, like I just came back from collagen injections and a cruise with my perma-tan. I learned to not jump to conclusions years ago. I had a brother with severe heart disease who had a heart transplant. He looked fine. He also got a lot of dirty looks. It got to the point where he just lifted his shirt and showed the scar which ran from his neck to his belt buckle. That shut them up. Sadly we lost him four years ago, but he is still an inspiration to me.
Maybe we should lift OUR shirts? nah, that wouldn't help but it sure would be funny.
We have enough to deal with, without other people's neurosis as well, so keep on chugging along in our wheelchairs, walkers etc with a smile.
Warm and happy weekend, Love, Mary
Posted 15 March 2008 - 05:14 AM
Barbara aka relicmom1
Posted 15 March 2008 - 07:07 AM
Posted 15 March 2008 - 01:07 PM
You are right indeed and thanks for the encouragement. I dont always feel that confident to confront these things, but I know me, one day it will just hit and the right words and reaction will just come out .
Sadie...its so awesome that you are asking these questions, we would never know these things about each other, otherwise. And the purpose of this forum is for support and to not feel so alone, it is definately working! Thank you
Take care all
Posted 16 March 2008 - 09:16 AM
Ah, if all we had to do was worry about how far in line we are and who is getting ahead. They have no idea how lucky they are to be able to wait in line, to stand for long periods, to endure the cold...........
I'll trade my spot in line (my illness for their health), if they feel somewhat cheated.
It is what it is...........
Posted 16 March 2008 - 11:35 AM
I'm lucky that I have an oxygen tank that goes with me everywhere now. so I don't get many looks anymore. But I used to get a lot of them.
I don't need a walker or wheelchair, or cane yet. Some days I wish I had them when I was out with my family/friends shopping or such. but don't very often go out anymore cause of this.
Hope your all well!