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Biomarker for Diffuse Scleroderma skin has been discovered!


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active generlized morphea


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#1 isobelle44

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Posted 15 March 2008 - 11:59 AM

This may sound like a silly question to some, but on the website here I saw something that said active generlized morphea should be watched carefully by a scleroderma expert. Why is that? Sharon

#2 janey

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Posted 16 March 2008 - 09:33 AM

Sharon,
No question is a silly question. (and yes, I use to teach in case that sounds familiar smile.gif ). I'm really not sure why generalized morphea would require a scleroderma specialist except for ensuring that there isn't any systemic involvement (which usually isn't the case) or overlap of other autoimmune disorders. On the ISN generalized morphea page it says "Diagnosis of morphea is often confirmed with a skin biopsy, which is usually performed by a dermatologist. Morphea is usually diagnosed and treated by dermatologists."

 

If all you are seeing is a dermatologist, I would make sure that he or she has experience with your type of morphea and can recognize the need to call in other doctors if it were to become necessary. Sorry I couldn't answer your question, but I hope this helped.

Big Hugs,


Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 isobelle44

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Posted 16 March 2008 - 10:00 AM

Thank you for responding Janey, I do have a great Dermatologist, he took a biopsy, told me what it was and sent me to a rheumatologist to confirm no other involvement. That was about 8 months ago. He recently sent me to mayo clinic because he would like to treat it with uva treatments and they are the closest machine to me. But they gave a pretty full testing and confirmed the same diagnosis. I was wondering if the reason for a scleroderma specialist would be that the possibility of generalized morphea being the kind that could go systemic more then the others? I didn't read that anywhere nor had anyone tell me that, it was just something I wondered about. But yes you were very helpful. Thank you Sharon