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Painful Joints


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#1 Michelle2

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Posted 19 March 2008 - 09:55 AM

Hello~

For the past three day's I have been having pain in my left ring finger joints on either side of my wedding ring. It feels like I've sprained both my joints. I've never felt this in the past year since I've been having tight and swollen hands.

I've gone to the Dermatologist and he's given me Cortizone shots 2 times in the past 1 1/2 months. I have noticed a bit of a difference in the swelling of my hands. I am due for another shot, but the dermatologist asked me to wait until I've talked to my rheumatologist Dr.

Could the pain be coming from the "need" or "lack" of the cortizone shot?

I originally went to the Dermatologist to get PUVA treatments but he told me that they no longer do that since they never had any good results from it.

Has anyone had anything like this happen to them?? :unsure:

thanks for your imput!
Take care and stay warm,

Michelle

#2 barefut

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Posted 19 March 2008 - 05:50 PM

Hi Kuntry,

I have had some sharp pains in my knukles in the past but nothing of late - knock wood.

I've never had a cortizone shot but I remember my mom thinking the same thing about her joint pain after she had cortizone shots. I don't really know but you're not the first to ponder it.

Sorry I'm no help but hoping you feel better soon.

Take Care,
Barefut

#3 jefa

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Posted 19 March 2008 - 11:29 PM

Hi, Kuntrybumz,

Since your pain is so localised, have you tried direct heat: a hot wax dip or a microwaveable heat pack? Ibuprofen gel? Even a coldpack may offer some comfort, though I find them impossible because of the Raynaud's. Are you taking any anti-flammatories?
Warm wishes,
Jefa

Carrie Maddoux
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#4 relicmom1

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Posted 20 March 2008 - 03:34 AM

When I first began this ride called scleroderma ( in 1998) , I had one finger on one hand that was "locked" in a curled position when I would wake up in the morning. It also hurt like the devil. I was working for a primary care md at the time and he ordered an xray...it was normal...then he ordered the ANA and other labs. My ANA was off the scale (1:3280 , centromere pattern). He immediately sent me to a rheumatologist and I was diagnosis with seronegative rheumatoid arthritis. Then a year or so later, I began with the raynaud's and he changed my diagnosis to lupus. Over the next year, I became very "disheartened" with his care and changed rheumatologist and that's when I ws properly diagnosis with sclero. Now, I still have the problem with that one finger, BUT oter joints have joined the party!! :( I've had numerous cortisone injections in my right hip. They help for several months, then I would get another one and be so so for a few months. I worry about having so many, as I've heard that can be bad for the joint. I now have lidocaine patches that I put on my hip (and any other joint that may be the most bothersome) I find they help a great deal, but they don't totally take the pain away, but it is more tolerable. I have watermelon stomach , so I can't take NSAIDS :angry: . When I did take them , they helped a great deal. I hope you get some relief soon, I know how awful it can be with the fingers hurting all the time.
Peace :)
Barbara aka relicmom1

#5 Michelle2

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Posted 20 March 2008 - 05:26 AM

Thanks for the info Barefut, Carrie and Barbara!

I'm going to ask about the Lidocane patches. I like that idea. I'm also going to try a heating pad. Icing it down scares me because I have Raynaud's too. I'm sure I'd go straight into an attack.


(Another quick ?.....I have the Nitro-bid ointment given to me for my digital ulcer. It's almost gone and has been that way for months. How many times a day should I put putting in on my hands. Currently I'm doing it once a day all over my hands. I've read that some people get headaches from it. I would love to avoid that, but on the other hand would love to see this finally go away. I've had this since 10-06)

Have a fantastic Day!
Take care and stay warm,

Michelle

#6 jefa

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Posted 20 March 2008 - 06:54 AM

Hi, Michelle

As others will attest, misuse of the Nitro-Bid can be very troublesome, even dangerous. As with any prescription medication, especially one prescribed for a different use than originally developed, it is important to get clear instructions from your doctor (or pharmacist) on the precise method and amount for your case. Many things can affect the dose of medication that a person needs, such as body weight, other medical conditions, and other medications.
Here is the Mayo Clinic Information page on topical Nitrates.

It is my understanding (and I am not a doctor) that you should not be rubbing it all over your hands, but applying a precise amount at the base of the affected fingers. It is intended to be used twice a day (BID is the abbreviation for Latin bis in die which means twice a day), but again, it is important to follow your own doctor's instructions for use.
Warm wishes,
Jefa

Carrie Maddoux
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#7 omaeva

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Posted 20 March 2008 - 07:29 AM

I can also say be careful with how often you get the cotizone shots because they damage bone (make it weaker). My mother used to get shots in her nose for sinus problems and at this point she is no longer allowed to get anymore cortizone shots because her bones are so weak.

#8 Michelle2

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Posted 20 March 2008 - 08:04 AM

eeks! SCARY! I'll be talking to my dr about that tomorrow. He told me to rub it all over my hands twice a day.....I was just apprehensive about using it twice a day. I really didn't want to get the headaches that I've read about.

Thanks again! :wub:
Take care and stay warm,

Michelle

#9 MaryFanPhilly

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Posted 20 March 2008 - 02:38 PM

hi Michelle,
Have you seen a hand therapist? My doctor wrote me a prescription for hand therapy and I went for six months, which helped tremendously. I had been losing range of motion quickly and I feel my hands would be much worse if I had not seen her. She gave me exercises and passively massaged my hands and fingers which I taught my son to do for me. I have terrible pain in my finger- and toe- joints and paraffin or heated mittens and slippers are the only things that help, besides drugs of course. I do have joint contractures and friction rubs which ain't no bowl of cherries. It's very hard to deal with, how can you get through the day without using your hands?? Ask your doctor about hand therapy, it can't hurt. Love, Mary
Diffuse sclero; diabetes; hypertension; GERD with Barrett's

#10 barefut

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Posted 25 March 2008 - 05:29 PM

Hi Kuntry,

I'm with Mary on the hand therapy. I went for a short time, got some great stretching exercises, a wax bath for at home and a mini vibrating hand massager which I also use on my tight face & jaw joint. It helps a lot!

I do get friction rubs now and then too - had one the other day that lasted about 24 hours til it worked itself out. They're no fun when you have to count money and use keyboard all day :( I'm all out of cheese to go with my whine - I prefer chocolate anyway :rolleyes:

Take Care,
Barefut

#11 Karenlee

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Posted 26 March 2008 - 01:14 AM

Hahaha! Thanks for the laugh barfut. Yes I would like some cheese to go with my whine. :lol:

My dermatologist prescribed Dovonex cream for my hands and I have been rubbing it all over my hands and using a lot of it at a time. Now I am confused if this is just for the ulcerations? I thought it would be helpful for the hardening skin on my knuckles too so I have been furiously rubbing it in all over. Unfortunately I did not ask many questions when I went to see my dermatologist because I did not like the way he treated me and I just wanted to get out of there.
Is anyone else familiiar with Dovonex? And if so, what are your recommendations?

Much thanks!!!

Karen

#12 jefa

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Posted 27 March 2008 - 07:19 AM

Dovonex (Calcipotriene or Calcipotriol in the UK) is normally prescribed for psoriasis. It is a vitamin D derivitave which works by reducing the production of skin cells.

Not to nag, but you should never use any prescription without understanding what it is, what its side effects are and how it should be used. If you don't remember to ask the prescribing doctor, ask the pharmacist to tell you more about it when you get the prescription filled. Every prescription should come with an informational leaflet - read it and keep it for reference.

I include two links with information about Dovonex. The one from Mayo has a lot more information, but the Netdoctor link is a little easier to read:

Mayo Clinic on Calcipotriene (Topical Route) brand: Dovonex

Netdoctor.co.uk on Calcipotriol, brand Dovonex

Hope this helps.
Warm wishes,
Jefa

Carrie Maddoux
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#13 Karenlee

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Posted 27 March 2008 - 07:47 AM

Thanks for the advice jefa. You are right, I should have really asked more questions. I didn't think a topical cream could have such side effects. Shows how much I know. And thank you for the links. I'm going to be much more careful with use in the future.

Karen

#14 Michelle2

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Posted 27 March 2008 - 08:17 AM

Thanks EVERYONE for the helpful info! I'm looking forward to asking the dr about hand therapy! I love that idea! I got a parafin wax kit from Dr. Schols for X-mas and can you believe I still haven't broken it out for use yet. I'm going to have to get on that one. :D
Take care and stay warm,

Michelle

#15 Karenlee

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Posted 28 March 2008 - 01:18 AM

Kunrty, bust that parafin out! I am going this weekend to buy one as I have been told they are wonderful for joints and skin. Not to mention they make your hands soft.