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Low Iron Binding

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5 replies to this topic

#1 Lady Deb

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Posted 21 March 2008 - 02:05 PM

Today I finally got to go to the Rheumatologist concerning the fatigue, shortness of breath and low iron binding levels. He said that he is referring me to a hematologist because he feels like I'm not absorbing the the iron due to the scleroderma. He feels like I'll be getting IV iron. At least I'm starting to get some answers and results. :D

#2 jefa


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Posted 21 March 2008 - 11:31 PM

Hi, Lady Deb

I am glad you are on the right track to finding some answers. Please let us know what the hematologist says.
Warm wishes,

Carrie Maddoux
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(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#3 Sweet


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Posted 22 March 2008 - 01:17 PM

Hi Deb,

It's always so nice to feel like you're getting somewhere and getting the answers you need. Good luck!
Warm and gentle hugs,

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#4 Sue


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Posted 25 March 2008 - 12:52 AM

Lady Deb,

Just a quick note to wish you luck and offer one suggestion. I had a hard time with fatigue and found out my iron was very low. The Dr put me on iron tablets and my iron went even lower. He was baffled but then we checked my B12 level and it was even lower than the iron. We started B12 shots what a difference. It is taking a long time to get my level up but it has improved the fatigue and my iron is even starting to recover. Seems the body needs the B12 to do lots of good things. Anyway, please have it checked. Might help!!

Best wishes,


#5 Sheryl


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Posted 25 March 2008 - 07:46 AM

Sue, I was going to suggest the same thing. I was on the B-12 shots for about two years. I stopped them about a year ago and I am now anemic once again. I see my regular family doctor this Friday and was going to discuss getting them once again. I wish some of these doctors could do more doctoring like they used to do, instead of having us run around to a bunch of different doctors all the time. I know with Scleroderma they are just being cautious. But, UGGG!
Lady Deb,
Let us know how the IV Iron helps with your fatigue. Sheryl
Strength and Warmth,

Sheryl Doom
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#6 KarenL


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Posted 26 March 2008 - 04:49 AM

Hi there,

I just started Iron infusions and B-12 as well. They are really helping! I go every week, and while it is a pain, I have to sit for an hour and miss work, it's worth it. My B-12 was off the charts low as was my iron, I'd already had two total blood transfusions! The doctor says that with sclero, your red blood cells can be slow to regenerate, OR too big, making the transfer of oxygen difficult. That's why we are so tire and breathless. Good luck, again, it can't hurt!