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Bowel problems!


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#1 summer

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Posted 21 March 2008 - 06:50 PM

For the last few days I have been going to the toilet up to 20 times a day to open my bowels. I am not constipated, neither do I have diahroea, I can only pass small amounts at a time. The pain is getting bad as feel as though I am also going to vomit and have shooting pains going down my legs.

I know that when I eat super good, lots of fibre, fresh fruit and vegetables , not too many Carbohydrates and so forth, I am ok.

As soon as I eat pasta meals, chocolate and all of those naughty foods I really suffer the next day.

So I am wondering, is this a Scleroderma thing or something completely different. I had a routine Colonoscopy a few months ago to check for bowel cancer as it runs in my family. I was told that I have mild diverticulitis and to have another colonsocopy in 3 years time.

Thanking you all for your imput.

Take care
Celia :unsure:

#2 Sheryl

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Posted 22 March 2008 - 01:46 AM

Celia, It sounds like you are having a diverticular problem. Maybe you ate something with hulls like popcorn, or peanuts. If you eat either of those in abundance. (more than a handful is too much) Then this could be causing the problem or it could be bacterial overgrowth because you have possible malabsorbsion or from something you ate. It can be that you pass small amounts have the size of peas and get the cramping and for me I get extremely tired and have to take a nap. When this happens for a couple of days I call my doctor or if I have an extra prescription here I get it filled for one of the antibotics we rotate for such instances. I filled one yesterday that has been sitting here for almost a year. It is easier than calling the office and explaning all the time to the nurses why I need the prescription. Now my doctor writes one out when I am there for a visit, and when I need it I use it. Bowel disorders can run you down quickly. Sometimes all you can do is sleep, then wake up and try to do something and fall back asleep. That is another sign of bacterial overgrowth if you have diverticular or motility problems. Sometimes, it will run it course without calling your doctor. Other times it gets much worst and you have no choice but to go in. I took one pill yesterday and already I feel somewhat better. By tonight I should be fine. Tomorrow I will be back to normal. Maybe you can call your doctor and explain over the phone the situation and he will prescribe something for you. Sheryl
Strength and Warmth,
Sheryl

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#3 HeatherT

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Posted 25 March 2008 - 08:37 AM

Hi There,
I just wanted to add something that happened to me. I was having some problems with stomach cramping and frequent trips to the bathroom and brought it up to my rheumatologist. She had me reduce my dose of Prilosec (for Acid Reflux). She mentioned that prolonged use at my dose (2x daily) can sometimes irritate the gut. After I reduced my dose to just once daily, the symptoms disappeared and I feel great now. Of couse this was just my situation but it did serve to remind myself to always run new symptoms by my doctor. There actually might be an easy way to fix it.

Good luck,
Heather

#4 Webby

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Posted 25 March 2008 - 01:09 PM

My mum has similar complications. In her case it was found that her pancreas is not producing enough enzymes due to the sclero. An enzyme supplement has significantly helped.

#5 KarenL

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Posted 26 March 2008 - 04:45 AM

Just another possibility since you mentioned carbs and chocolate, you may have celiac disease. My Rheumatologist says is very prevalent with scleroderma patients and I do have it. The symptoms sound all too familiar. You can find out with an endoscopy, they will look to see if the villi in the duodenum are damaged. Good luck but in the meantime, try going gluten free and see for your self how it feels...it can't hurt.
Peace,
Karen

#6 debonair susie

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Posted 26 March 2008 - 06:27 AM

Good thread, Celia... I hope that you begin feeling better too.

Sheryl, you shed light on the problem I've been having for quite awhile, now.

I have been SO tired and sleeping later than I used to, for the last several months. Labs have been done for other things, but I'm pretty sure they ran labs to find out if I'm anemic, or not.
Anyway, the bacteria overgrowth is something I've had all along, but the tiredness is relatively more recent.

I'm having labs done tomorrow, so I'll ask if they can also check this out too.

Hugs,
Susie

PS Shery... How are you doing? Are you back home yet?
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Susie Kraft
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#7 Sheryl

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Posted 26 March 2008 - 11:17 AM

Hello Susie,
Yes, I am finally back home and at my computer once again. Though next year I might stay in Florida a few extra weeks. I can't believe the difference it makes in my physical well being. I have been wondering how you have been also. I will take the time and post you a special letter. I want to hear about your trip to Hawaii.

Ced, how are you feeling. Are you still having the same problems? It sure sounds like something you need to have checked out.

I have never been checked for Celiac disease though I know I have gastritus and diverticular problems. I use to be lactose intolerant which is a sign of celiac. But, I can now tolerate milk products. I couldn't eat breads with fresh yeast in them years ago. I use to have to freeze any fresh bread I made to kill the yeast ingredient or I would'nt get infections. But, today I can eat things with fesh yeast with out causing any stomach pains.

Do most of you with Scleroderma have some sort of BOWEL DISORDER?
Strength and Warmth,
Sheryl

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#8 summer

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Posted 28 March 2008 - 12:05 AM

Hi Sheryl,

Thanks for asking about my well being, I saw my new Rheumatologist at the hospital the other day. I mentioned about my bowel habits and that I have mild diverticulitis.

I had to have a blood test to check for bacterial overgrowth and she is writing a referal for me to have a gastroscopy and also a test to check for slow motility. She also mentioned that Scleroderma can also cause diverticulitis. This I didn't know. I also may have iritable bowel syndrome.

Take care
Celia