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Scleroderma Research: On-Line Survey


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#1 janey

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Posted 24 March 2008 - 03:41 AM

Stressful Life Events, Quality of Attachment, Resilience and Experience of Scleroderma.
(Password required: Scleroderma1)

This on-line survey is about the experience of Scleroderma. We invite people aged 18 years and over diagnosed with Scleroderma to complete the online survey. Scleroderma Research, Bond University, Australia.

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
Janey Willis
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International Scleroderma Network (ISN)

#2 janey

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Posted 02 April 2008 - 05:26 PM

If you didn't see this the first time, here it is again. This is a very interesting survey that is part of a research project on scleroderma. Very easy to access and to complete. It took me about 40 minutes.

If you haven't checked it out already, please do so.

Hugs to you all,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 KarenL

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Posted 03 April 2008 - 07:41 AM

Hi Janey,

The survey requires a password. Do you have it?
Karen

#4 KarenL

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Posted 03 April 2008 - 07:42 AM

oops...sorry...I just found it...:)
Karen

#5 janey

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Posted 03 April 2008 - 08:03 AM

Karen,
Glad you found it! For those who haven't, the password is "scleroderma1".

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#6 Shelley Ensz

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Posted 18 April 2008 - 04:08 AM

A reminder for those of us who haven't completed the survey yet -- it will be closed in a week or two, as they are nearing their quota.

Click on the link to go to the Bond University site, find the survey for scleroderma (there are several other studies listed on the same page). Click on the link for the scleroderma study and then enter the password of Scleroderma1.

Stressful Life Events, Quality of Attachment, Resilience and Experience of Scleroderma.
(Password required: Scleroderma1)

This on-line survey is about the experience of Scleroderma. We invite people aged 18 years and over diagnosed with Scleroderma to complete the online survey. Scleroderma Research, Bond University, Australia.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#7 Sweet

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Posted 18 April 2008 - 06:57 AM

Oh I did miss it the first time, thanks Janey for your persistence!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 Shelley Ensz

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Posted 21 April 2008 - 06:53 AM

Just a reminder, this online research survey will be closing in a few days. This is your chance to help scleroderma research, without having to leave home or give blood or otherwise be poked, prodded, or punctured!

Click on the link to go to the Bond University site, find the survey for scleroderma (there are several other studies listed on the same page). Click on the link for the scleroderma study and then enter the password of Scleroderma1.

Stressful Life Events, Quality of Attachment, Resilience and Experience of Scleroderma.
(Password required: Scleroderma1)

This on-line survey is about the experience of Scleroderma. We invite people aged 18 years and over diagnosed with Scleroderma to complete the online survey. Scleroderma Research, Bond University, Australia.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#9 Sweet

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Posted 25 April 2008 - 10:49 AM

Is the survey over? The password doesn't seem to be correct. :(
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#10 Sweet

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Posted 25 April 2008 - 10:50 AM

Never mind I got in. ..... :)
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)