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Sleep Apnea


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#1 relicmom1

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Posted 25 March 2008 - 04:25 AM

Hi All! I have sleep apnea (diagnosed in Oct 2007). I have had this CPAP machine since november 2007. I have a " full face" (it covers my nose and mouth) mask by Resi-Med. Now there are some nights I have no problems, but for the most part, that blasted mask and I have some serious ~~issues~~ :blink:
I can't seem to get it to fit comfortable, it's either too tight or too loose (and leaks air from around the seal. :P ) I have talked to the home health agency that provided this thing and all I get is "keep trying" <_< It seems if I get it tight enough not to leak, it's too tight. Does anyone have ANY suggestions?
Peace :)
Barbara aka relicmom1

#2 Sheryl

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Posted 25 March 2008 - 07:35 AM

Barbara, is there a reason you have to wear the full face mask? The company you are working with should give you other options. My doctor wanted me to wear the full mask for some reason. I had the same issues as you. If I turned the machine on before I had my mask in place it was leaking air if I smiled or moved my face at all. If I tightened it then turned on the machine it still leaked slightly and the next morning I would have big dents in my face or after several days have sores starting. I even wore bandaids under mine. So, I called the group that set me up with mine. I got them to change my entire style. I now have 3 different masks to alternate with. I just love the one with the little nose hole things. Or the small on that just fits over your nose and rests on your upper lip.

If you open your mouth all the time that is why you might have been given the other style to begin with. My doctor really didn't know of all the other choices. I sleep with a mouth guard for TMJ and I don't open my mouth at all so there wasn't any issue of what I needed. They have a special guard you can get so that you won't let your jaw drop while sleeping or a strap. I didn't need to look into that since I already have a special one made by my dentist.

Anyways, you have let them know your problems so now remind them you have been complaining and want resolution. You want to try something else, no you need to try something else. Mine goes up and over the top of my head and the hose spins easily so you can turn over easily into your favorite positions. I lost a paragraph. I was going to write something in caps and touched Enter and Shift at the same time. I am not go to rewrite everything. If you have other questions I will try to answer them for you.
Strength and Warmth,
Sheryl

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#3 relicmom1

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Posted 25 March 2008 - 12:25 PM

Thanks for the info Sheryl! I do sleep with my mouth wide open :P or so I'm told, but there's GOT to be something to help me. I get so frustrated that I take it off and THAT'S not good! I have also woke up with it off where I had taken it off in my sleep. I do have to say though, when I do get a good night with it I do feel better the next day. I was also told by the sleep lab doctor to sleep on my side, were you told this? Again, thanks for the input!!
Peace :)
Barbara aka relicmom1

#4 JJ-Knitter

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Posted 25 March 2008 - 12:47 PM

Hi Barbara!

My hubby and son both have sleep apnea and uses a CPAP. They tried the hubby on the full face one with very negative results! Both he and the son use one that just covers the nose and uses kind of a webbed, slightly elastic band to hold it on. The hubby had the same problems you are describing and what finally worked for him was to get the SMALLEST size they had. Now, this man ain't tiny and his nose is a truly "outstanding" feature. You'd have thought no way - he needs an XXL. Nope, it seems the small plastic nose piece actually nestles into the folds between his nose and his cheeks and seals better. Keep after the provider - there's loads of styles out there.

JJ

#5 scampie5

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Posted 26 March 2008 - 12:53 AM

Hi Barbara,

My friend has sleep apnea and she wears a mandipular at night and this just fits into her mouth and works very well she had to have it made maybe you could ask about this.

Lynn

#6 KarenL

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Posted 26 March 2008 - 04:40 AM

Hi Barbara,

My hubby uses a CPAP (since Aug '07) and still has issues on and off.

Forget the full face, it made him claustrophobic. He uses a mask called the hybrid since he too, is a mouth breather. it covers the mouth, and has two little "pillows" that sit in the nostrils. It's far from perfect, but he keeps trying. There is a yahoo group dedicated to this issue, you should join! They talk about all sorts of problems like yours and there are tons of members. Good luck.

Peace,

Karen

#7 relicmom1

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Posted 26 March 2008 - 02:15 PM

Thanks everybody!! I will keep at the provider of the CPAP and I will also talk with the doctor who diagnosed the sleep apnea. I've never been on the yahoo website, I will definitely check it out! Thanks again everybody!! You guys came through as usual!! :)
Peace :)
Barbara aka relicmom1

#8 Sheryl

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Posted 26 March 2008 - 02:51 PM

Barbara, funny how different doctors tell you different things. My doctor told me it is always best to sleep on your back. I have always hated sleeping on my back. But, I am getting used to it. I just might have less episodes of sleep apnea when I am on my back. I have acid reflux so I get my best sleep when I sleep on my left side. Less stomach contents can flow up into the esophagus if you sleep on your left side is what I was told by my gastroenterologist. For now do what makes you the most comfortable. My mask stays in place much better when I am on my back. It seems to twist during the night sometimes. I realize it quickly. Sometimes when to much water gets inside it starts qurgling. Just keep your water (humidifer number low) or water can run down the back of your throat and amost choke you. You will get use to it if you don't give up. Don't Give Up.

Most insurance companies will let you change your headgear or mask system when you are first diagnosed. They have chin straps and or mouth pieces that jut your chin out so your throat area stays open and you won't snore. So many options. Start making phone calls you need your sleep. Amazing how much better you feel after getting that extra air supply into your body nightly. All systems seem to function so much better. I look forward to putting mine on at night. The first month was awful though. My nasal mask system is called a SOYALA vented. I sure hope you get resolution.
Strength and Warmth,
Sheryl

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#9 kiwimum03

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Posted 26 March 2008 - 07:01 PM

My hubby too has a CPAP, and he has to use the full face one, he tried the nose and mouth ones but they just didn't work for him.
He often felt like his mask was leaking, but once he complained about it they gave him a chin strap to put on before he put his mask on and now he has no problems at all.

Sounds like there some great advice given, so you should definately check out your options!

Hugs,
Irene

#10 Margaret

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Posted 27 March 2008 - 12:55 PM

Hi Barbara~~~

Gareth uses a CPAP machine at night and just got the new nasal plugs (smaller and softer) with a strap that goes over his head, but the air hose stays below and runs down under instead of over the center of his head. Does that make sense? Anyways, there is also a lightweight chin strap that keeps the mouth shut. The whole thing is so lightweight compared to what he started out with 6 years ago. He only uses the full face mask when he has a wicked cold and can't breath through his nose. Insurance will usually pay for replacements every 6 months, so the next time ask for the new nasal one and see if that works better.

Take care, Everyone.

Margaret

#11 relicmom1

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Posted 28 March 2008 - 03:21 AM

THANKS!!!!! Everybody. I have an appointment coming up soon and I will defineatley bring up the options!! I have a hard enough time getting sleep as it is,but with this mask and my issues :blink: with it, I have even more trouble sleeping.
Peace :)
Barbara aka relicmom1

#12 susie54

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Posted 04 May 2009 - 03:06 PM

Hi,

I have mild sleep apnea diagnosed this year. Funny, it seems worse when I am in a flare up. Anyway, I have the nose hole one, the small one that just goes in the nose. I take it off in my sleep all the time. The main problem I have is the mister on it causes my nose to get cold and it wakes me up. I wake up, then put it back on , then wake up, put it back on. I never seem to get it right. I am still trying. I do sleep better when all of it goes right. Hope you can work yours out.

Susie54

#13 relicmom1

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Posted 05 May 2009 - 05:03 AM

Wow!! It's been over a year since I posted this. To update, I have adjusted to the full mask...we still have our "moments" but for the most part everything is good. I do open my mouth after I fall asleep, so I do have to have a mask that covers my big mouth :blink: . My machine also has the humidifier and heater. When I first put it on, the moisture is bit uncomfortable until it heats up. Every once in a while, I must take it off in my sleep, 'cause I wake up with the mask lying on my chest. I truly feel for anyone that has sleep apnea, it is an aggravating problem, not to mention deadly.....
Peace :)
Barbara aka relicmom1

#14 susie54

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Posted 05 May 2009 - 07:42 AM

So glad you worked out your problems over the year. Susie54

#15 scampie5

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Posted 05 May 2009 - 08:57 AM

Hi,

My friend has sleep apnea and wears a mandibular mask. It is not a full mask so I was wondering why you need full one. Maybe you need to question the reason. My friends works very well.

Lynn