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Changes in appearances


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11 replies to this topic

#1 Guest_SADIE_*

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Posted 27 March 2008 - 12:48 PM

Hi, How many of you are or have experenced (spell?) tightning with your skin on your face, arms and legs? My skin is tight in alot of places. It still bothers me even though I've had Scleroderma for 18 years now. I do try to get my haircut often. That always makes me feel pretty. Anyone else deal with this?
sadie

#2 barefut

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Posted 27 March 2008 - 01:17 PM

Hi Sadie,

I do have the tightening in my face and I used to get really tight calves. It doesn't bother me too much anymore.

Some days it is hard to look in the mirror though because I do see a difference in my appearance too and it's hard to accept the changes. But if I remember that everyone is changing as they grow older then I don't feel quite so bad.

I love going to the salon too but am not always happy with the results! :lol: It's nice to get pampered now and then though. It does make me feel pretty too.

Take Care,
Barefut

#3 Susannah

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Posted 27 March 2008 - 08:10 PM

Hi sadie and barefut

Yes, I definately have changes to my face, hands, arms and inner thigh. I have days where my confidence is shot regarding my face, like today, I postponed my hair appointment becos I just couldn't face looking in the mirror that long and I get alot more people staring now which is hard to bear sometimes. At the supermarket the other day, the checkout girl kept staring at me (mind you she was a very sour girl) and I could feel it :( , my daughter noticed it and stared back at her until she became embarrassed and stopped (it made me proud of my girl for that :rolleyes: ). Im sure Im not that henous - hehe :lol: , but it is surely showing me the level of my vanity, which isnt a bad thing. I am consious of my arms as well and always wear long sleeves even in summer, but also thats not a bad thing as the sun is so harsh here in NZ and burns immediately. Im glad you asked sadie, its good to talk about these things that can usually be hard to deal with :)
Susannah x

#4 Helen

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Posted 27 March 2008 - 08:48 PM

Hi Sadie
I have a bit of skin tightening on my face, I hate having my photo taken as I look different now. I have a lot of tightening on my arms and legs. On my right arm the tightening is getting higher, it is nearly up to my shoulder....and I have only had sclero for 2 years. Hope it stops spreading soon. My forearms sting and itch a lot...drives me crazy sometimes.
I love to get pampered at the hairdressers too. My hairdresser is trying a new style, it's amazing what a new hairdo can do for your morale :D
Helen

#5 lizzie

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Posted 27 March 2008 - 10:35 PM

Hi Sadie, I have some tightening on my face around the cheeks and nose and my mouth is slightly smaller, at the moment is not too bad and I nobody else really notices the change as it has been so gradual over the last year. I do have permanently red rimmed eyes that I think make me look a bit like an albino rabbit, and people have commented on that (although they have not been so rude as to say I look like a rabbit!). Also some tightening on hands and forearms and lower legs - but again only mother-in-law.
I'm with you on the haircut - it really is my one extravagance, but it certainly makes you feel good and is the one thing that you wear every single day.
Lizzie

#6 summer

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Posted 27 March 2008 - 10:51 PM

I have a questions related to skin tightening that I hope some kind person can answer.

1. I have experienced the actual sensation of skin tightening in both wrists and also my face and neck area, I can't see any hardness to the skin. My skin is still supple, is this a gradual process or does the skin actually start to tighten with each sensation?

Many thanks
Celia

#7 Karenlee

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Posted 28 March 2008 - 01:12 AM

Hi Sadie.

The only changes in my face so far are the red spots all over my face and chest.
My skin is tightening up on my knuckles across both hands. I have noticed that my chest is starting to look "shiny" but my husband does not see it and thinks I am looking a bit too hard at myself, but I know my body.

Since I lost all of my hair, a trip to the salon is out, but I do treat myself to a pedicure every now and then. The calf and foot massage is the best part, not to mention the massage chair. And pretty toes put a little pep in my step.

Karen

#8 Susannah

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Posted 28 March 2008 - 01:57 AM

I agree with you KarenLee about the pedicure. I can't reach my toes to clip nails etc as my body is so constricted in the hip and knee joints, so have for the last 9 months gone and got them done professionally. My first treatment consisted of a soak in a foot spa, massage then nails clipped and finally polished but usually I only have the nails clipped and polished, which is cheaper too. I love choosing a different coloured nail varnish everytime.

Celia - I personally dont recall sensations of tightening, but have found the tightening has been gradual for me over the last 2years since my symptoms
first showed. The tightening began with my hands first, then crept up the arms and through my neck and chest, it is only slightly firm over my
trunk, but then is more severe on the inner thigh.

Susannah x

#9 Karenlee

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Posted 28 March 2008 - 04:04 AM

Suzannah, I have the same exact problem. I cannot bend enough to clip my nails, or even tie my shoes. The bow always ends up on the inside of the shoe because I can't bring my foot up far enough to get the laces tied on top.
Great alternative to that is either velcro or slip on boots.

Karen

#10 Sweet

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Posted 28 March 2008 - 05:15 AM

So far I am experiencing tightness in my neck. It is annoying, I find myself stretching it all the time, putting lotion on etc.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#11 lizzie

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Posted 28 March 2008 - 05:23 AM

Hi Celia, re the tightening : My face feel like it does if you put a face pack on , and I can feel it pulling when I open my mouth. The top third of the lines from the side of the nose to the mouth have disappeared but the skin is not hard. Like you I also get sensations of tightening on wrists, arms and legs but it is not present all the time- but it is especially noticeable when I am cold - the skin is gradually getting thicker /shinier but is still not hard. the only hard areas of skin I have are on my fingertips and palm side of fingers.
Lizzie

#12 Guest_SADIE_*

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Posted 28 March 2008 - 05:25 AM

Thanks for your replies. Its good to know that we all have each other with dealing with this nasty disease. The changes in my looks has bothered me alot but I did think of one nice thing. We will never have wrinkles. I can relate with others about not being able to reach my toes.
Sadie