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Had my Xrays


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#1 gemjar

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Posted 31 March 2008 - 07:07 PM

There is no sign at all of any arthritis in my hands and feet. I will go back to the rheumatologist in 2wks. It will be interesting, he thought I had OA. This probably sounds like a stupid question, but would we be expecting to see anything in the xrays if it is sclero? And why are my joints so sore in my fingers? In the pictures you can tell my fingers are bent, but the bones look great!

Also my general practitioner wants a CT scan of my neck, because I now have numbness in my small pinky finger , hand and arm on my left side......started from the pins/needles I get during the night and 2 really bad nights when my whole arm was paralysed, but burning with pain (if that makes sense) I have been told it's not carpal tunnel.

I have been taking anti-inflammatories again and they seem to be helping. My feet are more swollen in the mornings and when I put them on the floor, they feel rounded underneath like pillows, but at the same time my ankles and backs of my lower calf feel very stiff and sore until I get moving. Does any of this ring a bell? I will be telling my rheumatologist that all these thing seem to be slowly getting worse.

I told my hubby that the xrays are all clear and he said "thats great, but whats wrong with your fingers then". My mother thinks it is the tendons from 20yrs of hairdressing, but how does the swelling fit in to it all?

I remember someone writing that their fingers looked like prunes when the swelling goes down and I can agree there. Mine look like they've been in water by the end of the day and sometimes even the airconditioning has the same effect.

thanks for listenning,

Karen :)

#2 Sheryl

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Posted 01 April 2008 - 12:36 AM

Hi Karen, keep everyone informed on what is happening with your arm. My baby finger and half of my ring finger also go numb. I get the paralized feeling in part of my arm. My doctor thinks it is from my shoulder freezing up on me. I was hoping for some physical therapy. But, my arm is too bad he believes. So, I get my MRI on the 11th. My doctor will get the results and set me up with a specialist. I have had carpal tunnel surgery in that hand. It effects all the fingers except half the ring finger and the pinky. Yours sounds a bit like tennis elbow complaints my friends have. You can get tennis elbow without ever playing tennis I've been told. I hope you find out what is causing yours. If I find out any information on why my two fingers are numb I will let you know. Do you have pain in the palm knuckle joints just below where your fingers start? My joints there also pain. That started way before the shoulder pain started. I hope you find out what is causing your pain. My joints in my neck creek or pop when I turn my neck never thought about it steming from the neck area. So many things to think about and all we want is relief from the pain. Sheryl
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#3 Cheri

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Posted 01 April 2008 - 05:22 AM

Hi Karen,

I can't really answer your question about the xrays, but I'm sure somebody else can. It was interesting to read about your fingers though because I noticed my fingerpads look like prunes and even more so, when my hands are cold. I couldn't find anything about it doing a search on the Internet, so I was beginning to think my fingers always looked like prunes and I had never paid attention before. My feet have started feeling like they have extra padding on the bottoms when I get up in the morning, although it goes away after a bit. That's one thing I love about this site, is knowing you're not alone.

Take care,

Cheri

#4 debonair susie

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Posted 01 April 2008 - 05:56 AM

Hi Karen,

Oh, that is really frustrating when an answer isn't found when it's obvious there's something going on :unsure:

Please refresh my memory?... Have you been experiencing skin tightening? If so, that might account for your fingers being bent.

Let us know when you find out anything?

Hugs, Susie
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#5 Peggy

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Posted 01 April 2008 - 06:27 AM

My whole journey with finally finding out I had sclero started with my hands and feet and then moving farther up tingling at first and then going numb. One of my stops was with a neurologist at Mayo Clinic who told me to "learn to live with that" and still didn't give a reason as to what it was from. Needless to say I moved on and kept on looking for answers. I them met with a neurologist at the University of Minnesota who said it was peripheral neuropathy and at the time couldn't say what it was from. It was after his referral of me to the rheumatologist doctor whose specialty is sclero who then diagnosed sclero. At the time I was on neurotin and lyrica as it then escalated to break out nerve pain and then on to muscle pain. I now have just gotten the additional diagnosis of Polymyositis. I now am waiting to get another appointment with the neuro doctor again who will be informed of the new diagnosis of Polymyositis so my journey still isn't done other than I at least now know what I have. In addition I also have Sjogren's, Raynauds, and mixed connective tissue disorder, as well as hypothyroid.

I hope some of this info helps you and you may find too that it's from one of these diseases as it sure sounds like what I've gone through.

Thanks and warm hugs.

Peggy

#6 janet905

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Posted 01 April 2008 - 03:07 PM

hi karen,
before I was diagnosed with limited sclero, one of my first symptoms was carpal tunnel and back pain. my x-rays were normal at the time. I felt like a hypochondriac but was in real pain. the x-ray tech was the only person who noticed that my hands were puffy. that was one more clue that helped me figure out the puzzle. my rheumatologist has me classified as having RA along with sclero (bloodwork was all positive for sclero) even though my initial bloodwork did not point to RA. now my most recent x-rays of hands show some areas of thinning bone(osteopenia) in just the last few years. the rest of my skeletal structure is ok (except for painful joints). don't feel like you are crazy, this disease takes a long time to show itself as somthing recognizable. janet

#7 gemjar

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Posted 01 April 2008 - 07:24 PM

Thankyou, thankyou, thankyou........it feels sooooo good when I hear others having same/similar problems (sorry that sounds aweful)

The general practitioner thinks the numbness is due to nerve problems in the neck...hense the CT scan. She did mention peripheral neuropathy and also possibly anti-depressants I am taking, which she is slowly weaning me off. I will probably be a mess agin (mentally) when I get to the rheumatologist in two weeks, but the positive side to all this, is that these possible causes will have been eliminated.

Susie....my fingers and feet are very swollen first thing in the morning. Sometimes the puffy fingers will go down during the day, but at other times when I'm using my hands quite heavily eg; cleaning, gardening, they will stay puffy or even become worse. It started with just my right index finger, but has progressed to all fingers on my left hand and only the index and middle fingers on my right. They are also slowly bending, although if I lay them on the table and push down I can get them flat....but that is uncomfortable after a couple of seconds.

Does the skin tightening happen to everyone, or have some of you only ever had the swollen fingers that doesn't progress any further ?

Thanks again ladies, your replies have helped me more than you know......hold on....i think you do know :)

Hugs......Karen

#8 Sheryl

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Posted 02 April 2008 - 01:34 AM

Karen, to answer your last question. For myself the progression is going nowhere at this time. I just have swollen and painful knuckles and hands. Thick skin, but not shiny and tightly pulled skin. Sheryl
Strength and Warmth,
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#9 Karenlee

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Posted 02 April 2008 - 01:48 AM

Hi Karen

I have really swollen hands, with some thickening on my knuckles although not shiny. The thickening is not tight per se. I see shiny skin on my chest, although my husband does not see it so not sure if that's me being paranoid or him being in denial. :P

Hope this helps.

Karen

#10 relicmom1

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Posted 02 April 2008 - 05:40 AM

Hi Karen!
When I changed to my new rheumatologist, she ordered a bunch of xrays and I'm to take the actual films to her to review personally. She said the changes caused by sclero are often missed by radiologists because they don't see many sclero patients. I know the frustration you are going thru Hang in there.
Peace :)
Barbara aka relicmom1

#11 Peggy

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Posted 02 April 2008 - 05:51 AM

My fingers are swollen and the skin is tight. Some days they are more swollen than others and it hurts to try to make a fist. I have some curling of the top of some of my fingers, some of them being worse than the others. There are some days I swear I can feel the skin tightening in my hands.

Good luck to you at your appointment. It always feels better when you can get your questions answered by your doctor and when you have these appointments quarterly, like I do now, by the time your appointment rolls around you have a whole new bunch of questions and concerns to hit them with.

Warm hugs.

Peggy