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Finally have appt. with Sclero Specialist

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4 replies to this topic

#1 Bunky


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Posted 01 April 2008 - 09:50 AM

Good afternoon everyone!

I finally was able to schedule an appointment with the scleroderma clinic at UCSF (Dr. Kari Connolly) for May 5. That gives me a month to make sure I have all the records I need.

When I saw a rheumatologist one year ago I spent 2 months collecting past medical records, hoping for a definitive answer, but the doctor never even looked at them. So I don't want to kill myself trying to track everything down if I don't need it. Does anyone have any suggestions as to what I should bring with me?

I've already faxed the referral with my most recent labs, but they are a year old. My primary care physician is willing to order new labs, but isn't sure what the sclero doctors will want.

Thanks so much!


#2 Karenlee


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Posted 01 April 2008 - 10:30 AM

Hi Bunky,

Great news that you were able to get in with a specialist. Can you contact the specialist and ask what records the sclero doctor may want? This way you aren't running around in circles. (I know the feeling :( ).

I would think any x rays, blood work, sonograms and if you've been to a dermatologist, any reports from that. Also any meds you may be on.

Good luck!!!!


#3 Guest_SADIE_*

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Posted 01 April 2008 - 11:24 AM

Bunky, I'm glad you have a appt next month. My Mom always takes alot of notes at my appts so she takes them with us plus, a complete list of meds that I'm on. She has made a little journal book about test I've had done,meds that I've been on and etc.I wish I could help you more.
You're in my thoughts,

#4 Snowbird


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Posted 04 April 2008 - 04:47 AM

Hi Bunky

I have been away so I missed welcoming you too! Sure hope it all works out for you and I wish you good luck with your appointment.
Sending good wishes your way!

#5 smac0719


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Posted 05 April 2008 - 01:19 PM

I'm glad you have an appointment. When I was running around for 2 years trying to get diagnosed, I took copies of all my labs, office notes and tests reports since the inception of my symptoms to all appointments. The doctors were very appreciative as they don't always get a complete history because they don't know what's been done. I now just ask for copies of everything I have done and keep it in a binder to take with me to all appointments. That way if something hasn't gotten to them, I can pull it out for them to make a copy of it. I also keep a list of current meds and my phisician names, specialty, address and phone numbers in the binder too.

Best wishes!!
I may have Scleroderma, but Scleroderma doesn't have me!