Question about bowel issues
Posted 03 April 2008 - 07:32 AM
Posted 03 April 2008 - 07:39 AM
I had ulcerative colitis 16 years ago and they took out my colon. I also have celiac disease. I always have gas, bloating and diarreah. Are they related to scleroderma, it seems so. I know that since I've been on the celiac diet, I'm a little tiny bit better. But ANY carbs, cause the symptoms to be worse.
Posted 03 April 2008 - 07:47 AM
I also deal with bowel issues. Mine have now changed also. I think because of the medicines we take it changes what happens in our digestive system. I still have gastritis and diverticular disease but take medicines to control this. Then I also have medications if I have a flare-up. So far my system is working, but it is slow at times. Sheryl
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)
Posted 03 April 2008 - 05:03 PM
Her new rheumetolist started her on a therapy of on again, off again antibiotics because he said her colon was just so full of bad bacteria. So continues to eat a lot of yogurt now and then when the diarreah flares up she goes on the 10-day antibiotic regimen. The doctor also found the vitamin D and I'm pretty sure vitamin K, deficiency which he said was affecting her digestive system so the takes heavy does of that, calcium and the prilosec.
At one point a couple years again I suggested she take a digestive enzyme that I used to use for my own bloating and gas. It didn't work all that well for her but didn't seem to hurt. The doctors have told her that she needs the acidophalis so not sure you're doing that but might talk to your doctor about it and the enzymes.
Posted 03 April 2008 - 10:12 PM
You can count me in too. However, I have noticed an improvement in the past year. Used to be I didn't want to even leave the house. Had my most clean and convienent restrooms around town mapped out in case of emergency. I don't need my map anymore - knock wood.
Hang in there,
Posted 04 April 2008 - 04:45 AM
Oh boy yes. This is one of my biggest problems. I have to take action daily in order to make sure things work OK. Such as drinking a lot of water, eating enough fiber and most of the time taking Miralax nightly. I have to also be very careful about how badly I really want to take that pain pill or sleep medications as they constipate me horribly. Here is a link to bowel involvement that may help you out.
Posted 04 April 2008 - 06:19 AM
I just recently started having issues since my rheumatologist told me no more coffee. Now things aren't quite moving along like they used to. I used to be very regular when I had my morning java but now not so good.
I started having bran cereal every morning and drinking more water. Hope it helps.
Posted 05 April 2008 - 01:11 PM