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11 replies to this topic

#1 Bird Lady

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Posted 04 April 2008 - 06:20 AM

Birdman just finished his 12th cytoxan infusion, His breathing and skin is better but we don't know what to expect now. Has anyone else been through this? and what treatments did you recieve after the cytoxan?
Thanks in advance!!!
BMW
Hugs for All,

Julie (Bird Lady)

#2 Karenlee

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Posted 04 April 2008 - 06:32 AM

Hi BMW,

No, I have no personal experience with it but that's great that he's seeing improvement. Keep us posted on his progress and good luck.

#3 Peggy

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Posted 04 April 2008 - 06:47 AM

I had cytoxan for only 5 months and then it started attacking my bladder so I had to quit it. I noticed a softening of my skin after about a month but now it's been 4 months of not being on it and any improvement I had has long disappeared. Maybe it was because I wasn't lucky enough to be on it longer. I hope you have great results. I only wish I had maybe drank more water when I was on it and then it wouldn't have went after my bladder.

Good luck.

Peggy

#4 GocartMoz

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Posted 04 April 2008 - 08:47 AM

BMW,

I am so glad to hear your husband is doing better. I wish you continued success.

Dave

#5 LisaBulman

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Posted 04 April 2008 - 08:48 AM

Sorry I can't help with what comes next but I did want to wish him continued improvement!!

Hugs,
Lisa
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#6 jefa

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Posted 04 April 2008 - 10:07 AM

I'm sure you and Birdman are both glad to have the infusions behind you. I do hope that there is enough improvement to have made it all worthwhile. Hugs to both of you.
Warm wishes,
Jefa

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#7 kellyA

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Posted 04 April 2008 - 02:58 PM

I finish my 9th treatment next month, I also am wondering what t0o expect, I just started back at the gym and Im able to do 45 min of the treadmill, beofre the treatments I could not even do 5 min..I do feel better..

KellyA+

#8 janey

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Posted 04 April 2008 - 03:30 PM

HEY BMW,
So great to hear that the birdman is showing improvement! I wish I could answer your question, but I've had no luck finding the answer to "what's next?" I can say that when I was on oral cytoxan the plan was to keep me on it for a then switch to cellcept. Unfortunately I didn't make it through the first month of oral cytoxan without having to stop it. What comes after IV cytoxan, I have no idea. What are his doctors telling him?

I hope the improvements continue.

Big hugs to you both,
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#9 peanut

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Posted 04 April 2008 - 04:05 PM

Hey Kelly A, Birdman, & Julie:
I finished my 13th cytoxan treatment mid March. It's my understanding that eventually when your rheumatologist feels you're "stable" you're put on a less toxic immunosupressant to maintain you stablity, like Imuran or Cellcept. My rheumatologist tried this with me after my 6th treatment. Unfortunately it didn't work for me but it has worked for many others.

This is just my experience.
Take care,
peanut

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#10 epasen

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Posted 04 April 2008 - 10:28 PM

Hei BMW and Bird Man, glad to hear that you are seing some kind of improvement :) I hope that you'll see more in the future! Emmi

#11 Snowbird

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Posted 05 April 2008 - 04:04 AM

Me too, best wishes Bird Man with continued success! That's good news!
Sending good wishes your way!

#12 debonair susie

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Posted 05 April 2008 - 04:39 PM

BMW and Birdman,

I'm glad to read that there has been improvement with regard to the cytoxan infusions.
I've not had any experience w/ them, but I'm so glad they're helpful.

Please stay in touch and let us know how you both are doing.

Hugs, Susie
Special Hugs,

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