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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 summer

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Posted 07 April 2008 - 05:53 PM

Last year I suffered terribly with the flu in winter time, so this year I was going to be prepared and I had the flu injection 5 days ago.

I woke up yesterday with a mild dose of the flu, but I was still able to function. Last night and today was awful my body feels like lead, it is a big effort to walk, talk and even a simple task like pegging washing on the line is a big effort.
I also have aches and pains and my throat has gone from sore/raw to numb.

I did mention on one of my posts a few days ago that I have developed this nagging dry cough, which I could taste blood. Today I have also noticed that the Pain is coming back in my lungs when I take a deep breath, I have not had this in nearly 6 months. I have been told I either have ILD or PH.

I am seeing a Gastroenterologist tomorrow for the first time to sort out reflux and bowel issues.

Has anyone else experienced flu like symptoms after the flu injection and lung problems arising ?

Many thanks
Celia

#2 barefut

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Posted 07 April 2008 - 06:07 PM

Hi Celia,

I have gotten the flu shot for the past 2 years and all was well. However, my grandmother who is in her 90's seems to get a mild-ish flu every year with her shot so I can say it is not unheard of.

I think you should definitely mention this to your gastro doctor at your appt and see what he thinks.

Also, if I were you, I'd at least call your pulm.doc and mention your pain in your lungs. He may want to see you. Don't wait!

#3 relicmom1

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Posted 08 April 2008 - 02:08 AM

Hey Celia!

I worked for 25 years in a primary medicine practice. The dr always said if you got those type of symptoms that soon after getting the shot, you were already "brewing" something and it was not caused by the shot.......That said, I have known people that have had the same thing happen, so I really don't know if what the dr says is so....... I do know that before I had sclero I caught the true blue flu one winter ( I never took the flu vac) and after surviving that I always get the flu vac. The one year I didn't get one ( I was about 6 pregnant when it was time to get it) My OB wouldn't let me get one and I'll be darned if I didn't get the flu!! I now make sure EVERYBODY here in the house gets one, not only because they live with me but they are all "high risk" folks...both kids have asthma and hubby has diabetes. My dr also told me that it is still possible to catch the flu even if you've had the vaccine, but it is usually a much milder course.

I hope you feel better soon!!!!! (((((HUGS)))))
Peace :)
Barbara aka relicmom1

#4 debonair susie

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Posted 08 April 2008 - 06:24 AM

Barbara's post is how I've always felt about flu shots.
My mother-in-law never took one because she felt it "gave" her the flu, even though I would tell her what Barbara relayed to you in her post.

I've gotten flu shots for years and have never regretted doing so. We all know it's not going to protect us from all flu forms, but it lessens the severity if/when we do get it.
Also, where colds are concerned... If I DO get a cold, it's never as bad as it may have been had I NOT gotten a flu shot.

So... it's totally up to each individual... whether, or not to take one. However, it's recommended that anyone who has chronic illness... as we all do... take one.

My mother, who is 82 next month... always worked with the public in the medical field, so she always got a flu shot. However, the last few years, she has become a hermit and anytime anyone comes to visit her is very careful not to be sick when doing so. Mother had quad-staph pneumonia 10 years ago, nearly died and has been on O2 ever since, so we're careful. Anyway, I haven't taken her for a shot.. for the last couple of years... because I felt it would put her at more risk, simply by taking her to the clinic.

Take care of yourself Celia!

Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#5 smac0719

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Posted 08 April 2008 - 12:37 PM

I had been getting a flu shot for years due to asthma (prior to the sclero diagnosis). I never had much of a problem from it. However, since the 3 years I've been diagnosed, I've had the shot twice. I ended up sick about 3 times the 1st year so I skipped the 2nd year. I only had 1 mild cold that year. I took it again this past year and have been sick 4 times!!! I can't say that I doubt the medical experts who say the shot does not make you sick, but I think it does something to my immune system where I'm not able to fight off colds. I'm considering not get one this year.
I may have Scleroderma, but Scleroderma doesn't have me!

#6 Snowbird

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Posted 08 April 2008 - 01:30 PM

Hi

I have been getting them for several years. The first year I got it, I got a very mild feverish flu that lasted about 2 days. It has never happened again since then. The nurses do tell me that if I have anything starting (like the start of a cold or flu), then I should not get a shot during that time period.
Sending good wishes your way!

#7 Sherion

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Posted 08 April 2008 - 01:41 PM

Celia,
Twice in the past I've had the flu shot and was sick the entire winter with the flu and colds. My doctor said this is not possible but I beg to differ with him. The last two shots I got have not bothered me at all, go figure. No rhyme or reason, I just know how sick I was when I first started getting them. It was years before I tried them again and not until I was diagnosed with sclero. Now it seems no problems. I still blame my sick winters on the shots.

Hope you feel better soon.

Sherion

#8 summer

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Posted 09 April 2008 - 12:24 AM

Thank you everyone for replying to my post. I am still not well but am feeling a little better. Now that I have lung pain which Is really strange as I only notice it getting bad in the evening. I wonder did having the flu injection cause my immune system to react in a negative way for me to have pain in the lungs??

Take care
Celia

#9 Karenlee

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Posted 09 April 2008 - 12:49 AM

Hi Celia,

I have never had a flu shot. (I'm too chicken :P ). I did get the flu this year, it lasted around 5 days and knocked me for a loop.

Karen