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Aching all over...general feeling of unwellness


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#21 Lucy

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Posted 13 April 2008 - 05:44 AM

Hi Ladies,
New to this forum but not to Diffused SD have suffered for 2 1/2 years before finding this group.
Methotraxate did not work for me, just made me so sick. Predisone I loved but my rheumatologist said 4 weeks max to try and shock my system and that's all I got, but I was never the same when I came off.
However, I was put on .05 mg of Eltroxin which is a Thyroid med - even though my levels when testing were in the normal range. This one pill gave me a little energy boost and helped with the aches and pains. My doctor said it was a safe, known medication and it has really helped me.
Lucy
Diffused Scleroderma
Diagnosed Dec/06
First Sympton Nov/05

#22 smac0719

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Posted 13 April 2008 - 03:34 PM

Karen....my rheumatologist prescribes the B-12 and the syringes (recommend 31 gauge short needle). The nurse showed me the process and I inject in my leg. Never thought I could do it, but it's not bad at all.
I may have Scleroderma, but Scleroderma doesn't have me!

#23 barefut

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Posted 13 April 2008 - 07:12 PM

smac,

I could do that! I'm going to keep the B12 on my list of questions for my next appt.

Thanks,

#24 peanut

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Posted 14 April 2008 - 02:24 AM

I would highly recommend B-12 shots! Sometimes it takes a few shots for your body to get used to them, like 3-4. I didn't notice any difference my first shot but by the forth I had tons of energy.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#25 debonair susie

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Posted 14 April 2008 - 06:58 AM

Hi Jen,

I sure hope you can find something that alleviates the fatigue... the unwellness that you are feeling. As beaty mentioned... it could well be a flare.

My sister-in-law started on Plaquenil about a month ago, so I'm keeping my fingers X'd that this works for her. She has Sarcoidosis and two weeks ago, got a diagnosis of Ankylosing Spondylytis (last week, I could spell it... this week?!)

The B-12 shot seems to work well for many here!

Hugs,
Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#26 Annie N

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Posted 15 April 2008 - 01:19 AM

B=12 shots are great!!!!
I have them regularly and don't think I could function without them.
Annie

#27 Karenlee

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Posted 15 April 2008 - 02:33 AM

Thanks Smac...I think I'll ask about it at my next appt with my Rhumetologist. Gonna have to get used to giving myself shots sooner or later as we are having fertility issues and they were mentioning some sort of self induced shot for egg production. (sorry for TMI Lol).

Karen

#28 truman

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Posted 15 April 2008 - 08:28 AM

Lucy:

Thanks for the heads up on Eltroxin. Synthroid is the only med I'm allowed to take until the doctor figures out what is causing my hives.

They're still continuing, so if necessary on Monday, I'll mention this thyroid med.
Tru

It is what it is...........

#29 truman

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Posted 15 April 2008 - 08:32 AM

Tangie Girl:

How are you feeling today. Weather is getting hot here. Going to be in the high 70's by Friday.

Thinking of you and the little cuties. Mia's eyes are terribly infected. Oliver I believe, is the culprit, as he is constantly grooming her. I bathe her eyes with a washcloth and warm water and apply an antibiotic to them. I just hate seeing my poochies in discomfort. I love them dearly.

Linda
Tru

It is what it is...........