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The "Sclero" cough!


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#1 summer

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Posted 10 April 2008 - 01:36 PM

I have had this terrible cough for awhile now, first it started out as a dry irritating scratchy cough , which quite often I could tase blood at the back of the throat.
After the flu injection that I had one week ago, I have come down with a mild case of the flu, but now the cough is phlegmy and I cough so much I feel as though I am going to vomit.

I know that I either have ILD or PH, my questions to you all is this:

1. When people on this forum talk about the "Sclero Cough", is it dry or phlegmy?
2. For people who have ILD what type of cough do you have?
3. Can you get a cough with PH?

Many thanks to you all and take care
Celia

#2 Kamlesh

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Posted 10 April 2008 - 03:09 PM

Hi Celia,

I am having severe cough with itchiness in throat and chest. Nothing has helped me so far. My view is that due to severe acid reflux, my esophagus and lungs are filled with fluid. It is natural tendency of body to cough hard to remove fluid in the lungs. After severe cough, I always see phlegm comes out of my nose.

I take Aciphex for acid reflux and have my bed elevated. Simply, can’t find any solution for the cough.
Kind regards,

Kamlesh


#3 janey

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Posted 10 April 2008 - 04:40 PM

Celia,
I've had a chronic cough for 5 years. I'm constantly experimenting with my diet and the way I take my pills to see what makes it worse or better. I have discovered that some of the cough is due to the whole heartburn thing. I truly believe you can have heartburn without even knowing it. I take cellcept and the instructions say to take it on an empty stomach. I noticed that made my cough even worse. Now I take the pills with breakfast and cough less. I still cough, just not as much. It is a dry cough and at times causes me to choke and find breathing difficult. I can 20 to 30 seconds without being able to catch my breath. It's scary. I do have a mild ILD concentrated to the lower lobes and now a mild PH. If I eat dairy I get a cough with phelgm due to lots of post-nasal drip. I hate that cough so bad that I've pretty much eliminated dairy.

I'm sorry that the flu shot actually gave you the flu. Bummer! I hope you feel better very soon.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
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International Scleroderma Network (ISN)

#4 lizzie

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Posted 10 April 2008 - 10:26 PM

Hi Celia, I think that sclero cough is usually dry, and yes you do get a dry cough with PH. If your cough if phlemgy,and is any colour other than clear it sounds more like a chest infection - which might explain your flu like symptoms. Perhaps worth seeing you general practitioner?

Lizzie

#5 peanut

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Posted 11 April 2008 - 12:50 PM

Hey...
hum that's wierd I was under the impression the flu can't give you the flu cause its a dead virus. the flu can make your immune system lower so if you were already susceptable... weird.

I've had a cough since 2003. It was dry or just producing white or clear. Of late it has cleared up though :) If it's green call your doctor. Yuck...

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#6 Vee

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Posted 11 April 2008 - 01:02 PM

Hi Celia,

I've had ILD for almost 10 years now. My cough is mostly dry. It is not as bad as it was in the first 5 or 6 years. I take an OTC allergy med with Decongestant. I take it at night, and it helps me tremendously. My cough will get phlemy if I work myself into a coughing "fit". And I agree wtih Janey wholeheartedly. I think the reflux issue makes the cough worse. And I also believe that we have reflux without even knowing it sometimes. My PFT's have been stable for 4 years now, and my cough is not as annoying as it was. I hope you find relief soon.
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#7 summer

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Posted 11 April 2008 - 02:46 PM

Thank you all so much for replying. I managed to call the Scleroderma Nurse at the hospital where I see my rheumatologist., she has made an appointment for me to see my rheumatologist this coming wednesday. My lungs are pretty bad at the moment, it hurts to breathe, but worsens at night. I also awoke this morning to a sharp stabbing pain under my ribs on the right side when I take a deep breath. It feels worse when I am lying down and if feels like something is going to pop, weird.

Peanut, regarding the flu injection, the nurse at the hospital that I spoke to mentioned that she knows a few people who had the flu injection this year and has come down with the flu really bad.

Take care
Celia

#8 Gidget

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Posted 11 April 2008 - 02:48 PM

Celia,
I have the sclero cough but it is caused by my acid reflux. As long as my reflux is under control, I don't have the cough. If I have one bad night, I will get the cough for the rest of the week. It is a dry irritated cough. Good Luck. Gidget.