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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 truman

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Posted 11 April 2008 - 09:07 AM

I just got a a letter from Disability that I have to meet with their their doctors later this month. Is this a good sign?

Thank goodness it's right up the street. I will attend. Nothing to hide.
Tru

It is what it is...........

#2 peanut

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Posted 11 April 2008 - 09:44 AM

Tru,
Sometimes they just want their own people to write in their own words your condition. It's kinda dumb but it's just another hoop. It's neither good nor bad...

peanut

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my HMO makes me wear a helmet...

#3 Karenlee

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Posted 11 April 2008 - 09:52 AM

Hi Tru,

It's basic protocol. They want you to bee seen by one of their doctors because some people try to pull a fast one and get on SSI for no reason. It's really just part of the application process.

Good luck!!!

Karen

#4 nan

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Posted 11 April 2008 - 11:39 AM

Truman,
It was a good sign for me. AFter I was examined by the physician for the state( I was a teacher) I got state and federal disability. The physician wrote 10 pages back and front about me. My husband did a flow chart to show how one ailment impacted another. For instance, I am in horrible pain all of the time but I can't take anti-inflammatories because I have a stomach that bleeds spontaneously. My Raynaud's is awful, but I can't take Norvasc because my blood pressure is already so low. When I tried the smallest dose I was bedridden for 17 hours! There are many more, but I won't bore you. If I were you I would download that new info I posted because scleroderma is there. Best of luck !
Nan

#5 peanut

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Posted 11 April 2008 - 11:54 AM

Wow Nan... a flow chart? I'm impressed!

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#6 truman

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Posted 11 April 2008 - 12:10 PM

Nan:

The letter said to only bring my medications. Do they mean a list, or actual medications?

Should I begin to make notes. It's not just the toe amputation for the original application, but the skin involvement, calcifications, pain, etc.; or should I just wait till I get there to explain.

You're help is appreciated. Also, I have downloaded the new ruling. Should I bring that as well?

Linda
Tru

It is what it is...........

#7 nan

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Posted 11 April 2008 - 01:24 PM

Linda,
I sent you a private message with my answers.
Nan

#8 Sweet

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Posted 12 April 2008 - 07:35 AM

I will be very interested to see what types of things this doctor checks for you.

I wonder if they've contracted with doctors in various cities. I have been involved with the medical community here for over 26 years. There is no one I know that is designated as one of S.S. doctors. Maybe they piece the work out. I know all the doctors here, so it will be strange to have to see one regarding this.

Really looking forward to your outcome!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#9 Sheryl

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Posted 12 April 2008 - 08:35 AM

Tru, I would say it would be good for you to have your own topics or thoughts written down. That way you don't forget some of the important possibly UNSEEN things that they may be unaware of.
On to your question, they may or may not call you a day or two before and go over some things. They asked for medications then bring in your brief case full. Any person can say they are on 20 drugs but do they really take 20 drugs. Did they have prescriptions filled for 20 drugs. You can also get a printout of all the prescriptions you have had filled in the past year from your local pharmacy. Or your online prescription company. It is possible they already have access to that information. After all, it is our government working for its people. Good luck my dear friend. Are you smelling clean and smoke free today? I hope so. You seem to be a high achiever, you can do this. Set your goals my friend. Keep us informed of what is happening.
Strength and Warmth,
Sheryl

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#10 Kaycee

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Posted 16 April 2008 - 10:59 AM

Okay, Tru, I'm late jumping on this one but here goes...when I applied (and I was approved on the first try with NO visit to THEIR doctor or appeals of any kind) I gave them a list of medications AS WELL AS a list of all of the possible side effects AND indicated which side effects I suffered from. Similar to the flow chart. I also gave a very detailed list of how the disease affects me on a daily basis and was very specific. Based on everything I had heard previously and what people now tell me, I am sure this is what helped my case. That and an excellent team of physicians working on my behalf. Good luck and keep us posted.
Much love,

Kim


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