Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Constant Muscle Movement Question

  • Please log in to reply
3 replies to this topic

#1 Gizelle


    Senior Bronze Member

  • Members
  • PipPipPip
  • 46 posts
  • Location:Canada

Posted 05 December 2006 - 04:45 PM

<_< When I relax, my muscles, everywhere, move constantly, like their twitching. The only, sore muscles are on my left calf. Only my legs use to this, now it's everywhere. Most times you can see it. My general practitioner doesn't know why. I have Fibyromialgia too. Any other experiences similiar? Thanks, Gizelle

#2 rlbrussell


    Senior Bronze Member

  • Members
  • PipPipPip
  • 45 posts
  • Location:Chapel Hill, NC

Posted 05 December 2006 - 07:40 PM

My muscles used to be really jumpy and twitchy. It turned out I had polymyositis and my spastic muscles have improved tremendously with treatment. It was a tricky diagnosis because my cpk labs were normal. They caught it using another muscle enzyme lab called aldolase in addition to the fact that I was getting pretty weak. I hope you find answers soon.
Diffuse Sclero
dx Jan 2006

#3 LisaBulman


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,133 posts
  • Location:Massachusetts

Posted 06 December 2006 - 02:16 AM

Hi Gizelle,
I have been having twitching too, mostly in my arms but when I am sleeping I get them in my legs then they turn into charlie horses. Not sure why.....

Just know you are not alone.

Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#4 scleroguy


    Senior Bronze Member

  • Members
  • PipPipPip
  • 44 posts
  • Location:Southern California

Posted 06 December 2006 - 12:57 PM

Hi Gizelle,

I have muscle twitching too. I notice it mostly in my fingers, but I sometimes feel it in other muscles. I also have polymyositis (dermatomyositis is polymyositis with skin involvement).

Best wishes,

Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.