Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Is exposure to the sun a problem?


  • Please log in to reply
7 replies to this topic

#1 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 12 April 2008 - 01:21 PM

Hey All,
I remember there was a discussion recently on whether or not the sun is good for us. I think there is no question that the vitamin D we get from the sun is a good thing; however, I did find this article on our Autoimmunity page that you might find interesting.

Do You Have an Autoimmune Disease? Why You Should Beware of the Sun. While the most obvious threat is skin damage, the sun’s rays also can wreak havoc for many people with lupus, as well as those taking certain arthritis medications. Arthritis Today. 02/28/07. (Also see: Skin Involvement)

Big Hugs to you all,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#2 Guest_SADIE_*

Guest_SADIE_*
  • Guests

Posted 12 April 2008 - 01:30 PM

Janey, Thanks for the info! It is very interesting. I believe a little sun is good as long as you don't overdo it. I got really bad sun burn about 10 years ago. It was pretty painful with blisters. My skin hasn't ever fully recover on my one leg from it. We were at a horse show sitting underneath a umbrella on pavement and I had on sun tanning lotion and still got roasted.
sadie

#3 lizzie

lizzie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 12 April 2008 - 10:26 PM

Hi janey , I asked a question re the advisability of being in the sun last Nov when I was was going to visit my Dad on Portugal- its not usually much of an issue here in the UK :). I have just read the link you gave. As the doctor suggests - I have found that my skin reacts differently to the sun now- I don't get a tan but the sun just causes my skin to have hyperpigmneted areas, like 'age spots'. This is a shame as I aso have psoriasis which would benefit from sun exposure.
Lizzie

#4 Karenlee

Karenlee

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 381 posts
  • Location:Long Island, New York USA

Posted 13 April 2008 - 04:07 AM

When my dermatologist insisted "No sun" I should have (as usual) asked more questions. My rheumatologist never said anything about the sun.

Karen

#5 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 13 April 2008 - 04:36 AM

I use to lay out all the time when I was younger then when I was in my late 20's I stop laying out like I did. Reason why I don't want to look a like an alligator bag.. I have seen some woman who look awfull the skin with deep wrinkles plus you know they probably smoke too that doesn't help your skin either. I do jump in the tanning bed for a bit but not like everyday.. I do use a self tanning lotion its one of the best that Is out there and doesn't cost too much.. Yes becareful when you go out and make sure you have sunscreen on too. I will read the link when I am done... take care, Sam
Sam

#6 Hilda

Hilda

    Bronze Member

  • Members
  • PipPip
  • 11 posts
  • Location:Glasgow Scotland

Posted 13 April 2008 - 04:49 AM

Hi this Hilda and this is my first time on this or any other chat room. I have always loved and tolerated the sun well. Last tear was my first time abroad,Egypt, since my diagnosis. I could not believe the difference in my health, my mobility and energy were doubled at least after my holiday. I believe that it is different however for each person.

#7 Margaret

Margaret

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 996 posts
  • Location:Pennsylvania

Posted 13 April 2008 - 04:51 AM

Hi Janey ,

Thanks for posting this. Gareth went to his brother's rugby game yesterday.....sunny and 60 outside. He had on long sleeve shirt and jacket, but by last night, his face, neck and hands were so red and burnt looking. It really surprised me....he was only out from 3-4:30. He's on Plaquenil.....guess I had better watch him more closely this summer.
Take care, Everyone.
Margaret

#8 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 13 April 2008 - 04:52 AM

Hilda,

Welcome to our forum. I hope you enjoy our wonderful group. We try to be helpful to each other in what ever ways that we can.
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)