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Had Port Ckd Out - Ended Up In ER - No Blood Clot

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#1 Peggy


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Posted 14 April 2008 - 05:54 AM

Well I took everyone's advice when the pain was so unbearable on Sunday morning I told my husband I couldn't take it anymore and he took me into the ER. They did blood work right away and gave me a hypo that took away the pain. They also x-rayed the port and everything looked fine and in place correctly. The blood work then came back with a possible positive for a blood clot. So then I had to have an IV in for them to put dye in and to do a CT scan to see if there was in fact a clot. Well they couldn't get an IV in so they had to call in the anesthesiologist and he had a hard time (the reason the port was put in) and was even considering putting it in my foot or my neck for heaven's sake! Well he finally got it in and the scan showed no blood clot thank heavens. They then called the surgeon in who put the port in and everyone is at a loss for where or why there is this pain. So I am back at home with pain meds and hoping that it is some type of muscle pull or its just pain from all the IVIG that went in there last week. I am anxious to see if the IVIG worked or works and now have to put up with this on top of it. I am blessed tho that it wasn't a blood clot.

Thank you all for your feedback. I really don't know what I'd do without this site to go to.

Warm hugs,


#2 Karenlee


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Posted 14 April 2008 - 06:32 AM

Hi Peggy,

What a releif that there are no infections or blood clots, and that it may just be a muscle issue. So sorry you are going thru this, it's tough enough to deal with the issues that come with this disease but to have extra worries on top is terrible.

Thinking of you and wishing you a pain free recovery.



#3 debonair susie

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Posted 14 April 2008 - 06:38 AM

Oh Peggy,

You got to the ER before I got the post on your thread about your port... I am really slow!

I am so relieved that your problem wasn't a blood clot, too.... whew!!!
Ihope this rights itself soon for you... you've had a rough go of it!

Keeping you in my thoughts.
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#4 Guest_Sadie_*

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Posted 14 April 2008 - 08:33 AM

Peggy, I'm so sorry to hear that you had to go to the ER. I'm so glad you don't have a clot. Hopefully you'll soon feel better.

#5 Snowbird


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Posted 14 April 2008 - 01:36 PM

Hi Peggy

I'm sorry to hear you had such a hard time, goodness gracious!! I really hope it was just the pain from the IVIG from last week because that will mean it will get better soon! Hope you get some much needed rest in the meantime! :)
Sending good wishes your way!

#6 Kamlesh


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Posted 14 April 2008 - 04:28 PM

Hi Peggy,
I am glad everything is OK. We are not in a position to take any risks. Rather be safe then sorry. If I remember correctly, you were planning to go through stem cell transplant. Sorry, I have been inactive for some time. Just be strong and take a day at time, better days will be there soon.
Kind regards,


#7 barefut


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Posted 14 April 2008 - 05:52 PM

Hi Peggy,

I have learned to never under estimate muscle pain. I had pain that started in my shoulder blade and radiated over the top of my shoulder and into my pectoral muscle. It hurt to take a deep breath, it hurt to even lean forward.

Ya know what "cured" me - seeing my general practitioner and getting a referral for physical therapy! After 3+ weeks of agony (tension headaches with it) I had had enough, and the day after seeing my doctor the pain had subsided greatly and before I could make a PT appt, it was nearly gone. But I did suffer with it for nearly 6 weeks before it was completely gone.

Just letting you know my pain story to let you know that I can sympathize and if it is muscular, it could take awhile to go away completely.

So glad you have some pain management now! Hope your days are easier from here on out.

Hang in there,

#8 Susannah


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Posted 14 April 2008 - 06:46 PM

Dear Peggy

Im am so, so glad to hear that you dont have a blood clot. That is such a relief! Im thinking of you and hope you get some much needed painrelief.

Big Hugs

Susannah x