What were your first symtoms of your illness when it was starting up?
Posted 17 April 2008 - 08:48 AM
Now that I think back to those times I recall having alot of pain in my right leg for a few years before I got sick. I wonder if that could've been the scleroderma starting up? As a kid, I was always very healthy. I use to roller skate and swim.
Posted 17 April 2008 - 09:22 AM
My symptoms started with Raynauds as well. Then over the years the other symptoms started creeping up, like the infected cuticles and tanglestia. Not long after that the stiffness set in. But, I don't beleive that's when the auto immune issues began. I think they started in my late teens/early 20's when my thyroid shut down and my hair fell out. I just never put two and two together until now. I guess it takes it's own course differently in everyone.
Posted 17 April 2008 - 11:56 AM
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Posted 17 April 2008 - 01:39 PM
Posted 17 April 2008 - 02:17 PM
Most of my life though I have had joint pain , like growing pains, and have not been very flexible in the legs and knee area.
Posted 17 April 2008 - 02:23 PM
Mine were fatigue and joint pain. I think I just lucked out with my doctor. She said they learned in medical school never to take the ANA tests because it was rare they were ever positive. She did that after my iron was in the low but normal range and thyroid came back normal. She sent me to a rheumatologist right away. So now everything is starting.
Posted 17 April 2008 - 02:42 PM
It is what it is...........
Posted 17 April 2008 - 03:54 PM
In some ways I guess I should consider myself lucky because I found out fairly quickly. My first symptoms were puffy fingers that were getting stiff then terrible fatigue. Then my ankles got puffy and stiff, then I got raynouds and the heartburn this all within 6 months. At this point my doctor did the immune serious blood work and it advised the speckeled pattern and to investigate scleroderma. By the time I got to the specialist 12 months after my first symptom my skin had started to thicken and my hands would not close or open flat. She took one look at me and said without doubt it was SD.
First Sympton Nov/05
Posted 17 April 2008 - 09:44 PM
I was so small when this all started that I actually cannot remember it by myself.. but my parents have told me that it was the skin that made them take me to the doctor. I actually find some photos of me, taken in a hospital, when I was like 8 years or so.. Compared to a current situation, in those pictures I have much less skin involvement but luckily SUP is helping with it now
Posted 18 April 2008 - 12:51 AM
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Posted 18 April 2008 - 02:59 AM
In 1991, I began displaying more symptoms, at which time the testing began.
It took 4 years for the diagnoses to be made, at which time, I would vomit each time I would try to eat anything, losing 18 lbs in a month... flu-like.
The horrific joint pain, microstomia, tautness, pain in the hands... all seemed to come on about the same time. The "heartburn" symptoms steadily worsened, from then, on.
Posted 18 April 2008 - 03:26 AM
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Posted 18 April 2008 - 04:55 AM
Barbara aka relicmom1
Guest_Jude the Grouch_*
Posted 18 April 2008 - 06:00 AM
I was diagnosed when I was 12, but had the disease for several years before that.
Posted 18 April 2008 - 06:14 AM
This is interesting how everyone is different in their initial symptoms!!!
Gareth's first symptom was the esophageal dismotility and 10 lb wt loss. Immediately after they found the dismotility, they did blood work that came back positive for sclero. Withing a month after the esoph stopped working, he went downhill fast with restrictive lung problems, losing his voice, more wt loss, and major fatigue. Although his hands were cold, they weren't diagnosed of Raynauds because there was no color change and his capillaries were normal.
Take care, Everyone.