Posted 17 April 2008 - 12:49 PM
Posted 17 April 2008 - 04:27 PM
Sorry to read how much pain you are having to deal with. We do have a page on fibro treatmemts, most being alternative or non-drug therapies. Here's the link if you'd like to look at some of the studies. Fibro treatments.
I hope you find something that helps. The mud bath sounds interesting.
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Posted 17 April 2008 - 04:30 PM
Posted 17 April 2008 - 06:39 PM
Posted 18 April 2008 - 03:15 AM
I'm hoping you can find a purse that you don't have to wear across your shoulder. I'm not a candidzate for a fanny pack, becacuse I carry everything but the kitchen sink in MY purse . However, even carrying a purse in your hand can take a toll on your shoulder(s).
Heat definitely feels good, especially moist heat, the shower as so many find relieving.
I, personally ... like to stretch when the dog does, as she has a great regimen going on It seems to allevaite the tension that can build up in the body without our even realizing it!
My hubby got me a gift certificate for a body massage, but before doing so, asked if it could be gently done, as I have Fibro. He's surprised I haven't gone over to get the massage yet, but I want to have the entire day free so I can make a real day of it!! Also, I'm pretty sure I read this here... plus I know my stepson told me... that after the massage, drink alot of fluids, or a person can get really sore.
Posted 18 April 2008 - 10:15 AM
Posted 20 April 2008 - 06:38 AM
Let me first introduce myself. My name is Choice and I am a guy with Scleroderma. Briefly, I've been thru the chemotherapy and a heart attack and all of the other stuff but I'm still standing. I ski and snowshoe in the winter and hike and ride a bike in the summer. I am 52 and have had Scleroderma and lupus for 26 years. My wife of 10 wonderful years also has SD. We have been invited talk about living with the disease. I know I'm not the norm in SD.
Having said that, I am a massage therapist. Smac, if you'll take a rice bag or herbal bag.....I have one that folds over both shoulders and the neck....and microwave it according to instructions. Lay it on your shoulders prior to your son doing the massage. It will warm and soften the muscles. Then have him do lite strokes and gradually get a little deeper. This might not happen at first. Get your muscles accustomed to the touch. Sometimes just a firm grasp of the muscle will do more than a deep grab. I have shown massage techniques to other scleroderma sufferers and this one is a fave....as is hand massage.
I had some serious pain point issues in my scapula (shoulderblade) area and down my right arm. My doctor prescribed Lyrica which I take at nite. It not only lets me sleep, it relieves that pain so that I can work and garden and play with my grandsons.
I hope the massage advice helps.
Posted 20 April 2008 - 08:49 AM
Posted 20 April 2008 - 11:02 AM
Wanted also to say welcome to the forums Choice. You have been living with sclero for a long time. What took you so long to find us? I am glad to hear about how active you are. You are an inspiration.
Looking forward to learning more about you and your wife!
Posted 20 April 2008 - 11:10 AM
It is what it is...........
Posted 20 April 2008 - 11:47 AM
Choice, I would like to welcome you and your wife too! It sounds like you are doing quite well now, I'm happy to hear that! Is your wife doing as well as you are, if I may ask?
Posted 20 April 2008 - 08:48 PM
My daughter gave me one of those long shawl-like wheat bags and it gets used constantly, switching back and forth betwen hubby and me. We should probably invest in a second one. As you say, it is good for pre-massage warming, but it is also good for removing that inner chill that comes along with Raynaud's. When I can't seem to warm up, I find putting the warm bag across my thighs, just above my knees helps break the chill.
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