Hi, folks. Sadie reminded me that I was going to post this link. The link will take you to another link - they have apparently changed the info to a pdf file.
But You Don't Look Sick: The Spoon Theory. I asked her to count her spoons. She asked why, and I explained that when you are healthy you expect to have a never-ending supply of "spoons". But when you have to now plan your day, you need to know exactly how many â€œspoonsâ€ you are starting with. Butyoudontlooksick.com.
This from our Emotional Adjustment page.
1 reply to this topic
Posted 18 April 2008 - 10:55 AM
Jefa, Thank you for posting that! That is a great way to explain to others what it's like liviing with a illness. People don't always understand what it's like living with a illness. Someone one time asked me if I'm just tired all the time so I told them more about Scleroderma and they were surprised to hear about some of the things that go on. Alot of the time I don't share stuff with others and they don't know how I really feel because I smile alot and always say I'm doing good. I don't like bothering others with it but when they ask questions, I do talk a little more about it. Thats why sometimes I get on here and vent because I know everyone gets it.