Help With Chest Pain And Swelling
Posted 06 December 2006 - 02:47 PM
I hope someone can help me with this subjest I am in desperate need of info on this...... Ok here I go..... I am 27 and have been diagnosed with Lupus/MCTD/Scleroderma/Crest/Raynauds and pretty much everything that falls under that. I reside in Stockton CA.
I am having so much problems with my chest. They say that it is pluerisy and chondritis (please forgive me on the spelling!). My chest is constantly hurting, it feels like there is a brick on my chest so when I try to breath I am fighting with myself to do so!! Then I get really dizzy and sometimes pass out. My whole rib area swells up and gets extemely inflammed. I can't sleep at night due to this pain among other things. And I am tired of making the trips to the ER when they just tell me they can't do anything other than give me pain meds.!! This is EXTREMELY FUSTRATING
I have done so many tests and am still going thru it and so far they are all neg. except they are telling me that I have a weak heart.
I need help in finding some way to ease this pain and discomfort. I have tried hot and cold compresses, heating pads, hot showers, meditation, focus points, massaging, ...etc. etc.
For some reason some of these methods work sometimes. But I keep getting dead ends!!
The DR's say that I am already doing everything that I am supposed to be doing and am on the anti. meds, pain meds, prednisone...etc...etc. and they basically don't know what is causing this and don't know if they will be able to get it under control. I might have to live with this for the rest of my life and the anti and pain meds are the only thing that can control this at this time.
I truely believe that there is a reason why I am getting this pain, I'm not going crazy in making this up and I have faith that someone out there can maybe please tell me what this might be? What other tests I should do? Maybe Other Meds?? Or Methods that can help me thru this.
I hope to hear any feed back, Please no little or great info. is good info to me!
Thank you for taking the time to listen and read my blabble... I really do appreciate it. And if there is anyway I can help you with info or support pls feel free to ask as it will be likewise.
Thanks Again...Keep Positive...Have Faith....
Posted 07 December 2006 - 04:36 AM
I am sorry that you are suffering so much from your diseases at this time. I also have MCTD(Scleroderma/Dermatomyositis) and can relate to what you are going through. Although I have experienced chest pain and discomfort, I have not had the swelling or the amount of pain that you are having. I am sorry that I don't have any good ideas about how to ease this pain and discomfort.
You did not say how long you have been on your meds. Unfortunately, some of the meds used to treat the diseases take time to work, and it can take time to find the right meds or combinations of meds. Pain management is important during those times. This site has a lot of information on scleroderma, pain management, and coping with the diseases that you should take advantage of.
It may help you to know that many of us have gone through periods where our disease and or symptoms are worst than at other times. This is especially true at the beginning.
Please do not feel that you are going crazy. Most of us who have to deal with these diseases feel that way at one time or another. You are not alone. You will find that there are people on this board who understand what you are going through, and wish you well.
Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.
Posted 07 December 2006 - 04:52 AM
I am so sorry to read about your diagnosis and the problems you are having, especially with the chest pain. It's good that you have join this forum and am seeking help as well as continuing to bug your doctors for the cause of this.
I did find a couple of things here on ISN that might help:
diagnosing chest pain.
Diagnosing a Heart Related Cause of Fainting.
There are other suggestions for Pain Management, but many of these are for joint and muscle pain rather than chest pain. I'd still take a look and see if anything might interest you. Please keep us informed as to how you are doing. I'm so glad that you have joined us. It's a great group that can offer lots of emotional support as well as invaluable experience.
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 07 December 2006 - 07:56 AM
It looks like Janey gave you some great links to review, so I basically just wanted to welcome you to the group! I'm so very sorry you are having such pain right now! I know how unbearable it can be at times and how hopeless and helpless it can make us feel.
Please know we are here for you, post often and let us support you.
Hang in there my friend.
Posted 07 December 2006 - 10:04 AM
I too have the chondroital pain that you describe, but mine seems to come and go. When it happens I feel like an elephant is sitting on my chest and I can not take a deep breath. My rheumatologist said it is chest wall rheumatism (but I don't know exactly what that is...will ask more about it at my next appointment). I have found that the Celebrex and Plaquenil both help with this (they both help with all of my joint pain and fatigue and the way I understand it is the rib cage pain is considered due to the chondroital joint being inflammed. I do hope your pain subsides soon!
Posted 08 December 2006 - 07:28 AM
I have actually been on meds tring to get this flare up under control since August of last year. I recently went to the doctor and the new pain med and anti-inflammatory is slowly but surely starting to work. (Thank goodness!) I have actually been able to sleep good for the past two nights. This is a really good step for me.
Or maybe the Methotrexate,prednisone,Hydroxychloroquine and other meds are finally starting to work. But unfortunately I am losing my hair, but at least I am getting better and am keeping positive and faith!
Thank you again so much for the suggestions, support and sites Heidi , Sweet , janey , scleroguy. I really appreciate it and will F/Up with this info.
Oh and Heidi that is exactlly how I feel on a daily basis. I would really be interested in knowing more info on what your rheumatologist said about the cause of this pain. Funny thing is I have been to several Dr's and rheumatologists and they have not mentioned nothing about what you are talking about. But it diffently hits it right on the noise!! They just tell me it is Chondroitis and Pluersy. Thanks again for the info.
Well I hope everyone is having a good day and I am here for all of you as well and will keep you all in my thoughts. We will get better together!! Bless you .....