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How did the GI involvment start?


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#1 omaeva

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Posted 21 April 2008 - 04:35 PM

What is something sudden and drastic? Or was it slow and unnoticeable? What symptoms?

#2 peanut

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Posted 22 April 2008 - 08:07 AM

Mine was subtle and slow, eating more and more and more chalky antacids till it was ridiculous. Then I moved to Zantac, Nexium and now I've added Reglan.

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#3 Sweet

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Posted 22 April 2008 - 09:29 AM

Mine was subtle and slow as well. I felt like food wasn't being digested and started having a lot of bloating. I then started taking digestive enzymes which in my opinion do much. Then I began having a hard time having bowel movements which is still a problem. I take Miralax on a regular basis.
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#4 lizzie

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Posted 22 April 2008 - 10:46 AM

I also had a slow, subtle onset, was only in hindsight that I realised how long I had had GI problems (over 30 years before diagnosis with SSC!). In my late teens reflux-barium studies showed I had a very slowly emptying stomach, but I had no other symptoms. The problem disappaered after a year or two All through my twenties I had chronic constipation despite good diet, plenty of fluids and laxatives- even needed hospital treatment for anal fissure due the this. Also had frequent bloating (not related to premenstrual) that would make me look six months pregnant - that has continued ever since. I had no futher upper gut problems until about 4 years ago when developed frequent upper abdomen pain. An endoscopy showed that I had haemorrhagic gastritis - which was a bit of a suprise as it is usually associated with alcoholics or people who are severely ill, neither of which I was!. After a few weeks on a proton pump inhibitor there were no further problems. Then I started having trouble swallowing - I first noticed it when eating apples- they made me cough to the extent that couldn't eat them. The swallowing problem wasn't present all the time, just now and then. I was diagnosed with SSc two years ago - it was only then that I realised that all the gut problems might be connected to it. Since I was diagnosed I have developed reflux again and more frequent swallowing problems, plus worsening constipation interspersed with diarrhoea and bloating. Although now I have written it down I feel sorry for myself, it really is all little more than a nuisance to me most of the time.

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#5 janey

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Posted 22 April 2008 - 11:16 AM

I first developed Irritable bowel syndrome over a couple of months where it just kept getting worse and worse. My heartburn/reflux just appeared overnight. I'd never had heartburn before in my life then one day it started and wouldn't go away until the doctor put me on medication.

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#6 barefut

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Posted 23 April 2008 - 07:12 PM

My heartburn came on slowly. I was prescribed Prilosec for a short course but found out I could not be without it.

My IBS/bowel issues cropped up just before my gallbladder was removed 3 years ago and aparently are here to stay.

The surgeon who removed my gallbladder told me that proton pump inhibitors have side effects that mimick IBS - but so does the sclero so it's a double whammy.