Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Worrysome symptoms


  • Please log in to reply
20 replies to this topic

#1 CFMBabs

CFMBabs

    Silver Member

  • Bloggers
  • PipPipPipPip
  • 180 posts
  • Location:England

Posted 29 April 2008 - 10:09 PM

This is gettng worrying? I was outdoors last night having just cleared some rubble left over from our demolision work. I began to feel very jelly like --shaky and light headed. My heart was racing and I felt breathless. I believe that if I hadn't sat down right at that very spot -- I would have passed out for sure.

It took quite a while to get over the feeling and I ended up with a slight headache. I'm due to have a 24hr heart monitor in place, but my own feelings are that it could be related to my blood pressure which does have a tendency to go on the low side.
I kept taking deep breaths for some time later -- that's how it made me feel!
I'm sure it's nothing serious, but I am slightly worried all the same.

Best wishes

Barbara xxx

#2 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 29 April 2008 - 11:44 PM

Barb,

I had a similar incident at work a few days back. I suddenly felt shakey and weak and light headed and hot and cold at the same time. My hands were trembling.

I got something to drink and went outside for some air. It passed but still was strange and kind of scary so I know how you feel about it.

I also have had bouts of low blood pressure and have chalked it up to that for now though I don't know what the trembling was all about.

I'm going to write down the details of the incident and remember to tell my doctor next time I go - unless it keeps on happening then I'll call her.

When are you scheduled to be hooked up to he monitor?

#3 CFMBabs

CFMBabs

    Silver Member

  • Topic Starter
  • Bloggers
  • PipPipPipPip
  • 180 posts
  • Location:England

Posted 29 April 2008 - 11:58 PM

Definately peas in a pod you and I! Please do mention your symptoms to your doctor but I agree with you that I think it's low blood pressure!

I have the monitor put on next week 8th --9th. I don't expect anything to show up because I've heard of so many people having these tests and thay seem to prove very little -- unless you have an episode whilst being monitored.
I feel generally light headed all the time now and the trembling you experienced is definately attributed to the episodes I've been having.

I'll let you know how things go and then maybe you can mention it to your doctor, if I find anything out?


Best wishes to you, great blogs by the way!

Barbara xxx

#4 Karenlee

Karenlee

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 381 posts
  • Location:Long Island, New York USA

Posted 30 April 2008 - 12:30 AM

Barbara,

I never had the heart racing, but I do get light headed if I kneel down and then stand back up. I guess it's from low bp.

Keep us posted on how the monitor goes and good luck.

Karen

#5 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 30 April 2008 - 12:33 AM

Barbara, save some of the rubble moving for when you are wearing the monitor. Do some of the same things that seem to cause this problem when you where the devise. Some people will just relax and do nothing during the time alloted. Be your usually busy beaver self. I hope it shows something for your sake so that you get the confirmation that something isn't quite right. I also hope it isn't anything real serious. Keep us informed on what is going on. We all have so many of the same symptoms throughout the years with scleroderma that eventually we will be able to give give a real oppinion on what we think is happening to our physicians when they are scraching their heads. I wish you the best my friend. Have a nice day.
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#6 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 30 April 2008 - 04:29 AM

Hi Barb,

Sorry to hear about this incident. My first thought was "low blood sugar". Do you ever have problems like that? You described how I can feel quite often if I don't keep enough protein in my body.

Just a thought.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 Guest_Sadie_*

Guest_Sadie_*
  • Guests

Posted 30 April 2008 - 04:42 AM

Barbara, I'm so sorry that you haven't felt well. I have low blood pressure my self and I get very weak, dizzy and my heart rate goes up. Be careful with it.

Your feeding tube friend,
Sadie

#8 lizzie

lizzie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 30 April 2008 - 10:49 AM

Hi Barbara, I have been experience dizziness/lightheadiness plus racing pulse/ palpitations when walking at any pace. I'm due to have Holter monitor too ( have excluded PH). I also get a a racing pulse /shakiness combo , which in my case seem st be due to stressful situation or to tiredness.
Lizzie

#9 Snowbird

Snowbird

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,008 posts
  • Location:Canada

Posted 30 April 2008 - 10:54 AM

Hi Barbara

Sorry to hear you're not feeling well but Sheryl sure has a good idea...save some of that work until you have the halter on....good luck and I hope it's nothing serious also.
Sending good wishes your way!

#10 CFMBabs

CFMBabs

    Silver Member

  • Topic Starter
  • Bloggers
  • PipPipPipPip
  • 180 posts
  • Location:England

Posted 30 April 2008 - 07:54 PM

I'm going to see my dreaded general practitioner this morning. Anyone who knows of my situation with my general practitioner wil know that we have a rather bad relationship!

I want her to check my BP and blood sugar, as you suggested Pamela, I simply can't go on not knowing what this thing is?
I have had pancreatitis in the past and my sugar levels did drop dramaticaly, though I still think it's low blood pressure.

Because I dislike my general practitioner, my blood pressure will be raised when she takes it, I know this will happen so I'm going to ask the nurse to do it!

Better safe than sorry!

Thank you to all for your input

Best wishes
Barbara xxx

#11 CFMBabs

CFMBabs

    Silver Member

  • Topic Starter
  • Bloggers
  • PipPipPipPip
  • 180 posts
  • Location:England

Posted 30 April 2008 - 10:13 PM

Well! It's not low blood pressure 129/73. The nurse suggested aneamia although I had a blood test last week and nothing showed up then!

It's a complete mystery although the nurse did ask if I'd had breathlessness with these episodes. I replied that I hadso she thought that the 24hr monitor was a good thing to have because it sounds a lot like heart related symptoms.

I lay in the couch last night unable to do very much. This morning I feel okay but a bit headachy and a bit vague. I have a slight pain down my left side of my neck and an occasional dull ache in my chest.

I just want to lie down and not move, although I don't feel particulary unwell.
Roll on summer I say -- perhaps the winter's got me down?

Best wishes
BArbara xxx

#12 Peggy

Peggy

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 635 posts
  • Location:Minnesota

Posted 01 May 2008 - 04:53 AM

It sounds to me that you should continue with extreme caution until you know if it is or isn't heart related. I would continue to rest and not do anything too strenous just in case. Your symptoms sound like what a women would experience if she were having heart problems and being sclero can go after the heart you should be careful.

Warm hugs,

Peggy

#13 lizzie

lizzie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 01 May 2008 - 06:36 AM

Hi Barbara, did they do an ECG this morning to check out your heart? . If not I think if ache in the neck and chest are still there that you should perhaps think about getting one - even consider going to A and E. Pain from heart probelms in women can present differently to the classic pain in the chest and down the arm,. If it were me I would definitely be seeking further medical advice.
Lizzie

#14 CFMBabs

CFMBabs

    Silver Member

  • Topic Starter
  • Bloggers
  • PipPipPipPip
  • 180 posts
  • Location:England

Posted 01 May 2008 - 09:19 AM

I've been sort of okay today, certainly not as bad as I have been!
They didn't do an ECG but I had one last week at the hospital which was fine! I'm speculating with just about everything, one being that it could be due to lack of nutrition and working perhaps a little bit too much on my brick wall.

The pain in my chest comes and goes -- it's not a bad pain. Same happens with my neck that comes and goes too!
I placed all my bets on low BP, now I don't know what to think? I'd better wait till next week when all will be revealed. If they rule out heart problems then it can't be too serious, but it's frightening all the same!

Thank you so much for all your suggestions and kind words. I've taken them all on board.

Best wishes

Barbara xxx

#15 Guest_Sadie_*

Guest_Sadie_*
  • Guests

Posted 01 May 2008 - 09:37 AM

Barbara, Please keep being careful. Like everyone has said, take breaks when you start to not feel well. It doesn't take too long at all for the BP to drop very low.

Sadie

#16 Annie N

Annie N

    Senior Bronze Member

  • Members
  • PipPipPip
  • 79 posts
  • Location:Connecticut

Posted 01 May 2008 - 11:45 AM

Barbara
The chest pain and neck pain sound slightly alarming to me. I agree with those who say it could be symptoms of a heart problem. Please be careful and call your doctor and make him/her listen.
Wishing you well ~
Annie N.

#17 Kaycee

Kaycee

    Bronze Member

  • Members
  • PipPip
  • 25 posts
  • Location:Uniontown, PA

Posted 01 May 2008 - 04:32 PM

Barbara,

I agree that you should have it checked right away. Heart attackes do present differently in women than men and your symptoms are frighteningly like the symptoms women should look for. In the meantime, the lightheadedness could be due to low blood sugar. I know the feeling quite well being a diabetic and know when I feel that way, to get some sugar in my system to raise my blood sugar to a more stable level. Please don't rule that out either.
Much love,

Kim


Be yourself...everyone else is taken.

#18 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 02 May 2008 - 07:47 AM

Hi Barb,

I'm trying to get caught up here and your thread popped up!
Two things came to my mind, Barbs, because I've experienced similar things.

These episodes have happened on several occasions... during physical activity.
I got instantly weak... in my legs first and then all over... I attributed it to hypoglycemia,
so I stopped what I was doing and fixed a sandwich (protein) and added Powerade,
to increase the electrolytes/minerals. I never found out what caused it, but knew that
activity was done for that day.
I also had a quick drop in BP, due to the BP med I was taking, at the time. I experienced
that while hubby and I were taking a walk. I checked my BP when I got home and it was
VERY low... for me. Dr changed my BP med and that took care of that.

Have you ever had your carotid arteries checked before, Barb? Just a curious thought, as you mentioned
your neck.

I hope you find out what has been causing all of this for you, my UK friend!

Soft Hugs,
Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#19 aniwallar

aniwallar

    Senior Bronze Member

  • Members
  • PipPipPip
  • 92 posts
  • Location:Soeul, South Korea

Posted 02 May 2008 - 01:07 PM

Hi Barbara:

I have experience the same thing more than a couple of times. I was worried about it being the heart. I had the 24 hour heart monitor done twice and nothing shows. I don't have any symptoms with the monitor, just a little heart racing sometimes.
Well, I tell my doctor to explain why this happens to me and they tell me that it could be anxiety. I don't know what to think about this because, when this happens, I don't fell anxious at all. It just happens!!! Add to that the sharp pain on the left side of my chest (they say is gas) and the numbness of my left arm.
I guess what I want to tell you is that even though your test may come normal, you have to insist to your doctor and tell him everytime you have one of this episodes.

Ani

#20 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,261 posts
  • Location:Minnesota

Posted 02 May 2008 - 01:29 PM

Hi Ani,

As I understand it, you are quite right about saying "I don't feel anxious at all -- it just happens!"

There is actually a physical basis for anxiety, such as what can occur with a panic attack. Often they occur totally out of the blue, when a person is not bothered or worried about anything at all.

Panic attacks are caused by anything that initiates a jolt of adrenaline to the system, which can be from excessive worrying but can also be from many other physical triggers, such as low blood sugar, physical exertion, inner ear problems, hyperthyroidism, and even some vitamin deficiences.

Symptoms of a panic attack can be just like that of a heart attack or similar ailments (and often, even worse, with an impending sense of doom added to it, as well). It's a bit misunderstood when it is just attributed to anxiety, since worrying or anxiety is actually not necessary prior to a panic attack (although it may certainly accompany the panic attack, understandably.)

Anyway, due to the very wide variety of possible causes of heart-type symptoms, it can take a lot of time and testing to narrow down the culprit and being told they are caused just by anxiety is an over-simplification unless a person is actually also suffering from an anxiety disorder that is unrelated to any physical cause.

Also, many of us with scleroderma also have Hashimoto's thyroiditis along with it. Sometimes thyroid status can change very abruptly, either by itself or by a change in thyroid medication brand or dosage, and a hypothyroid person can become hyperthyroid -- with the hyperthyroidism then triggering a panic attack, even if an extremely well-balanced person with minimal stress of any sort is relaxing in a mud bath singing "Don't Worry Be Happy" at the time! So also be sure thyroid levels are thoroughly checked, as well, and that the doctor considers all possible causes, not only the heart issues.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.