Posted 29 April 2008 - 11:24 PM
Is there anyone taking Nifedipine for Raynauds?, if so, does it work for you and have you had any side effects?
Posted 29 April 2008 - 11:59 PM
I am taking Nifedipine and the only side effect I have dealt with is low blood pressure. I'm taking the max dose and it is warming up a bit here so it does help me so far and for now...
Posted 30 April 2008 - 12:02 AM
Unfortunately, it may no difference to the severity of my Raynauds but I've heard that it's quite good if you can tolerate it -- I couldn't!
I can't take anything now because of my swallowing difficulties but my rhuematologist is trying to find an alternative to nifedipine that can be taken through a feeding tube.
Try the nifedipine and see if it works for you -- anything is worth the try
Posted 30 April 2008 - 12:07 AM
I was just going to ask you if you took anything for your Raynaud's that may be the cause of your low blood pressure - there you go answering my questions before I ask them!
Posted 30 April 2008 - 01:39 AM
I see where you are coming from on the nifedipine thing -- it does lower blood pressure and it would surely be the one thing that I'd attribute my problems to!
Unfortunately, nothing can be taken unless crushed and because the tube is in my bowel, crushing tablets may not be a good thing!
There are other treatments apparently, Iloprost infusions being one of them. But I don't do hospital beds any more and I'd run a mile if they tried to admit me to a ward.
Ced! I hope the drug works for you -- Raynauds is the pit's!
Posted 30 April 2008 - 02:05 AM
It is what it is...........
Posted 30 April 2008 - 02:38 AM
Barbara aka relicmom1
Posted 30 April 2008 - 02:49 AM
I am going to see my rheumatologist today and want to ask about that (Norvasc) for my Raynauds, although my bp is on the low side, do you think he would still prescribe it for me? Or maybe just wait until the fall since the weather is starting to warm up.
The less meds the better I suppose.
Posted 30 April 2008 - 03:02 AM
I have also had an Iloprost infusion and that didn't help either my consultant then suggested I try Amlodipine because my Raynaud's has been bad this last year, that only helped very very slightly by making each attack fractionally shorter.
So now I seem to be just doing all the practical things like wearing mittens/gloves, heat packs, hats & scarves etc that we all do to try to keep warm.
Posted 30 April 2008 - 03:05 AM
I was on that for a total of 5 days. It made me have really bad dizzy spells right off the bat, and then I couldn't keep anything down. That's when I stopped. Now I'm taking norvasc and that tends to give me headaches in the evening.
Posted 30 April 2008 - 06:17 AM
I am surprised to hear of Plavix used for this. Since I have a history of blood clots in my legs, I asked my internist (who is also a cardiologist) about Plavix. He said that it only helps with clots in the heart (which explains why it isn't advertised for other uses, such as DVT).
Since most drugs that increase circulation tend to lower blood pressure, It is wise to keep track of blood pressure, and to be especially wary should you feel faint upon rising. Simple automatic blood pressure machines can be purchased at department stores or pharmacies. These can be helpful, since some doctors are hesitant to prescribe these drugs for fear of BP going to low.
Posted 30 April 2008 - 09:58 AM
Posted 30 April 2008 - 10:43 AM
Posted 30 April 2008 - 02:15 PM
I have very low blood pressure. My Raynaud's was acting up so much that my rheumatologist said to try the lowest dose I could of Norvasc. It knocked me out for 17 hours and it took me two days to feel halfway decent. It really messed me up.... I just try to stay warm.
Posted 30 April 2008 - 03:59 PM
I take Norvasc for Raynauds, which I know is also used to lower BP.
Revatio also helps.
You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...
Posted 30 April 2008 - 07:27 PM
I have a script for Nifedipine if I need to use it, which I will probably fill soon.
I'm not taking anything for Raynauds at the moment, have been trying to hold off and not wanted to add another pill to my list.
How are you Peanut, are you doing ok?, you are in my thoughts.
Posted 01 May 2008 - 12:21 AM
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)
Posted 01 May 2008 - 01:37 AM
I saw my rheumatologist yesterday and asked what I can take for the Raynauds and he suggested Viagra! But not until the fall though since it's warming up.
Posted 03 May 2008 - 09:47 PM
I took the adalat for a while and it did little good except bad headaches so they stoped it.
Due to a problem with heart arythmia I was put on Verapramil, which my dr said can also help the raynauds but thus far I have moved to a warmer house but still suffer raynaud attack daily. The Dr did double the dose but still doeant help that much, but I have to stay on it for my heart now anyway.
I dont get any side effects from it except constipation.
Kindest Regards Sharon
Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive
a little bent and broken and almost beyond repair!
Posted 04 May 2008 - 04:42 AM
Barbara aka relicmom1