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Raynauds!


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#1 summer

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Posted 29 April 2008 - 11:24 PM

I have alot of questions lately so I am sorry for posting too many times.

Is there anyone taking Nifedipine for Raynauds?, if so, does it work for you and have you had any side effects?

Take care
Celia

#2 barefut

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Posted 29 April 2008 - 11:59 PM

Hi again and no apologies lady ~

I am taking Nifedipine and the only side effect I have dealt with is low blood pressure. I'm taking the max dose and it is warming up a bit here so it does help me so far and for now...

#3 CFMBabs

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Posted 30 April 2008 - 12:02 AM

I took nifedipine some years back and I remember having headaches and a few hot flashes.
Unfortunately, it may no difference to the severity of my Raynauds but I've heard that it's quite good if you can tolerate it -- I couldn't!

I can't take anything now because of my swallowing difficulties but my rhuematologist is trying to find an alternative to nifedipine that can be taken through a feeding tube.

Try the nifedipine and see if it works for you -- anything is worth the try


Best wishes
Barbara xxx

#4 barefut

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Posted 30 April 2008 - 12:07 AM

Barb,

I was just going to ask you if you took anything for your Raynaud's that may be the cause of your low blood pressure - there you go answering my questions before I ask them! :lol:

#5 CFMBabs

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Posted 30 April 2008 - 01:39 AM

Mind reading now Serena!

I see where you are coming from on the nifedipine thing -- it does lower blood pressure and it would surely be the one thing that I'd attribute my problems to!
Unfortunately, nothing can be taken unless crushed and because the tube is in my bowel, crushing tablets may not be a good thing!

There are other treatments apparently, Iloprost infusions being one of them. But I don't do hospital beds any more and I'd run a mile if they tried to admit me to a ward.

Ced! I hope the drug works for you -- Raynauds is the pit's!

Best wishes
Barbara xxx

#6 truman

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Posted 30 April 2008 - 02:05 AM

I was on Plavix for the Raynauds. It worked very well in controlling it, but I had to get off of it ten days prior to operations. When I got back on it, the littlest scratch or itch would bring on bleeding like I had just be in a war :( . Finally decided to get off of it and just keep warm.
Tru

It is what it is...........

#7 relicmom1

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Posted 30 April 2008 - 02:38 AM

I take Norvasc 5mg for my Raynaud's. It has helped a great deal. I also have high blood pressure, so I don't have a problem with mine getting too low.
Peace :)
Barbara aka relicmom1

#8 Karenlee

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Posted 30 April 2008 - 02:49 AM

Hi Barbara,

I am going to see my rheumatologist today and want to ask about that (Norvasc) for my Raynauds, although my bp is on the low side, do you think he would still prescribe it for me? Or maybe just wait until the fall since the weather is starting to warm up.
The less meds the better I suppose.

Karen

#9 Buttons

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Posted 30 April 2008 - 03:02 AM

Celia I took Nifedipine but didn't have much luck with it, it caused me dreadful hot flushes but didn't particularly help my Raynaud's.
I have also had an Iloprost infusion and that didn't help either my consultant then suggested I try Amlodipine because my Raynaud's has been bad this last year, that only helped very very slightly by making each attack fractionally shorter.
So now I seem to be just doing all the practical things like wearing mittens/gloves, heat packs, hats & scarves etc that we all do to try to keep warm.

Jensue

#10 omaeva

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Posted 30 April 2008 - 03:05 AM

Hi,

I was on that for a total of 5 days. It made me have really bad dizzy spells right off the bat, and then I couldn't keep anything down. That's when I stopped. Now I'm taking norvasc and that tends to give me headaches in the evening.

#11 CraigR

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Posted 30 April 2008 - 06:17 AM

I've taken Nifedepine and Adalat (a closely related drug) at different times times for Raynaud's. Both were somewhat helpful, though I developed an unpleasant side effect after taking it for an extended period (not a blood pressure problem). I found Prazosin slightly more effective. This site is full of information on drugs used to treat Raynaud's - and there is quite a wide variance in the effectiveness of different drugs for different people. You might search some old threads for this information.

I am surprised to hear of Plavix used for this. Since I have a history of blood clots in my legs, I asked my internist (who is also a cardiologist) about Plavix. He said that it only helps with clots in the heart (which explains why it isn't advertised for other uses, such as DVT).

Since most drugs that increase circulation tend to lower blood pressure, It is wise to keep track of blood pressure, and to be especially wary should you feel faint upon rising. Simple automatic blood pressure machines can be purchased at department stores or pharmacies. These can be helpful, since some doctors are hesitant to prescribe these drugs for fear of BP going to low.

Craig

#12 Hilda

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Posted 30 April 2008 - 09:58 AM

I have been ion Nifedipene for a year and 4 months now I am supposed to take 80mgs a day but have admitted to my doctor I feel that is too much so take 60 mgs. I have found it very effective in helping the Raynauds phenomenon. My hands still have some problems but my movement hand cramps puffiness, white finger, purple pink and red finger and my toes problems are better. I also find that if my Iloprost infusions are 5 weeks or so apart that the combination helps my general mobility. I take alot of other measures to protect my hands including wearing gloves a lot of the time to avoid cuts or damage to my hands which take months to heal. I have had no real side effects except the occasional hot fushes thing when my husband tells me its like sleeping next to a nuclear generator I produce so much heat but it does not really bother me. Hpe this answer helps thinking of you Hilda

#13 lizzie

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Posted 30 April 2008 - 10:43 AM

Hi Celia, I initailly took Nifedipine, but it gave me headaches, so switched to nicardipine and can take that without problems- although not convinced that it makes it much difference. I have however recently also been prescribed Losartan and that has made a big difference. also have Iloprost 8 weekly from october to april. My rheumatologist has been having trouble getting my vascular problems under control and did consider viagra - but is difficult to get authorised for raynauds- besides which I would not be keen to take it.
Lizzie

#14 nan

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Posted 30 April 2008 - 02:15 PM

Hi,
I have very low blood pressure. My Raynaud's was acting up so much that my rheumatologist said to try the lowest dose I could of Norvasc. It knocked me out for 17 hours and it took me two days to feel halfway decent. It really messed me up.... I just try to stay warm.
Nan

#15 peanut

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Posted 30 April 2008 - 03:59 PM

Sorry so late,
I take Norvasc for Raynauds, which I know is also used to lower BP.
Revatio also helps.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#16 summer

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Posted 30 April 2008 - 07:27 PM

Thanks so much everyone to the response to my post.

I have a script for Nifedipine if I need to use it, which I will probably fill soon.
I'm not taking anything for Raynauds at the moment, have been trying to hold off and not wanted to add another pill to my list.

How are you Peanut, are you doing ok?, you are in my thoughts.

Take care
Celia

#17 Sheryl

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Posted 01 May 2008 - 12:21 AM

Ced, I also am on Norvasc 10mg for the lowering of blood pressure and Raynaud's. I hated adding more pills to my repitiore. One more is one more. You would think our bodies would be on overload from all the different medications we are prescribed for seen and unseen ailments.
Strength and Warmth,
Sheryl

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#18 Karenlee

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Posted 01 May 2008 - 01:37 AM

Hi everyone.
I saw my rheumatologist yesterday and asked what I can take for the Raynauds and he suggested Viagra! :P But not until the fall though since it's warming up.

Karen

#19 Sharonvandee

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Posted 03 May 2008 - 09:47 PM

Hey CED

I took the adalat for a while and it did little good except bad headaches so they stoped it.

Due to a problem with heart arythmia I was put on Verapramil, which my dr said can also help the raynauds but thus far I have moved to a warmer house but still suffer raynaud attack daily. The Dr did double the dose but still doeant help that much, but I have to stay on it for my heart now anyway.

I dont get any side effects from it except constipation.

Kindest Regards Sharon
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#20 relicmom1

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Posted 04 May 2008 - 04:42 AM

Karen, I have to be careful year round in regard to the raynauds. Going into an air conditioned room/store from the hot outdoors can trigger an attack. My rheumatologist wants me to carry a sweater/jacket EVERYWHERE I go in the summer due to that. I have had raynauds attack in my tongue of all places!!!!!
Peace :)
Barbara aka relicmom1