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#1 Sam

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Posted 01 May 2008 - 10:43 AM

Lyrica? My rheumatologist wrote a script for it and I have to wait for the insurance to approve it. I had xrays done on both hips and lots of blood work and urine test too. He scheduled me a echo and Pft for next week and I have to go back and see him next Thursday too. So I will be a busy camper next week.

He is worried about my leg are swollen. Plus I am having lots of SOB when doing somehting. I told him I'm jhaving a hard time walking that it hurts. He thinks most of the pain is from the Fibro. Plus arthritis too. Well that is about it. Sam
Sam

#2 Sweet

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Posted 01 May 2008 - 10:45 AM

I'm not taking it, but it has been brought up because of the fibromyalgia. It's supposed to really work well!
Warm and gentle hugs,

Pamela
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#3 truman

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Posted 01 May 2008 - 10:49 AM

Sam:

I took Lyrica. The secret I later found out is that you have to continually take it, not just when you have pain. When you continually take it, then the pain is reduced.

I found no side effects with it, except some leg swelling which went away.

Hope that helps.

Linda
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It is what it is...........

#4 peanut

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Posted 01 May 2008 - 11:29 AM

I take RLS for restless leg.
One of the good side effects is it is also an anti-depressant.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#5 Sweet

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Posted 01 May 2008 - 11:53 AM

Peanut,
How are you doing? I love your little bald head!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 peanut

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Posted 01 May 2008 - 11:58 AM

Hey Sweet,
I'm bald, bored, and waiting for May 8th - when I go into the hospital, start the chemo and get my new cells. My health is well and I hope it continues to be so as I go thru this process. No infections!

hugs, peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#7 Sam

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Posted 01 May 2008 - 01:04 PM

Yes the doctor told me he is going to start me out with low does then work me up to higher to find out what works well for me. I hope the insurance wil approve it soon. Sam
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#8 Sweet

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Posted 01 May 2008 - 01:12 PM

Peanut,

So happy you are doing OK. You are a trooper!
Warm and gentle hugs,

Pamela
ISN Support Specialist
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#9 Sherion

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Posted 01 May 2008 - 02:26 PM

Sam,
I tried Lyrica and had a bad reaction. It made me really zombied out, I couldn't walk straight, kept bumping into walls. My vision was blurry and my hands swelled. The doctor said I was having an adverse and possibly an allergic reaction and to quit taking it. I sure hope you don't have any trouble but just be cautious. I sure wish it had been good for me, it would have helped with my fibro.

Sherion

#10 YFChoice

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Posted 01 May 2008 - 03:38 PM

Hey Sam.....my family doctor put me on Lyrica for some pains that we just couldn't isolate as to the cause. Started on small dose and worked my way up to 225 mg which allowed me to not have those particular pains for a full 24 hours. Took about 3 days to get over the spacey drowsy feeling. I switched to taking it at night........sure helps me sleep.......and the next day I feel better.

My BlueCross/Shield does cover it.

Good luck!
~ You have to think anyway.....you might as well think big

#11 truman

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Posted 01 May 2008 - 05:13 PM

Sam:

I don't have the bottle in front of me, but I believe mine was 75 mg. I stopped taking it shortly after the operation. It did take the edge of pain off, but I had to combine it with other pain relievers.
Tru

It is what it is...........

#12 jefa

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Posted 01 May 2008 - 09:36 PM

My husband has been taking Lyrica for a few weeks now. It was prescribed for his anxiety, insomnia, post-herpetic neuralgia, fibromyalgia and restless leg syndrome. They started him on 75mg per day for a week, then two capsules per day and this week he has been on three. I believe the target is four which would be 600mg per day. He is normally quite sensitive to anything. Right away he started getting relief from the neuralgia. In the second week he was able to sleep through the night. His RLS seems to be getting better but is still there. He is quite groggy at the beginning of each new stage but gets used to it.
Warm wishes,
Jefa

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#13 Sam

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Posted 02 May 2008 - 04:17 AM

Thanks everyone Yes I had decided to take it at night because I'm not sure of what it will do. the rheumatologist thinks most of my pains are from Fibro which could be plus some arthritis as well. I'm so hoping this works out. I want to spend some time with my granddaughter over the summer and have her here for a few days each week. My step son and his girlfrend are expecting another girl in June and I want to help out as much as I can. Again thanks for the comments, Sam
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#14 debonair susie

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Posted 02 May 2008 - 06:59 AM

Hi Sam,
It is probably a good idea to take it at night, as you have decided to do... always wise when a person doesn't know how they're going to react.
I hope it works and works well for you.

Susie
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#15 truman

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Posted 02 May 2008 - 07:49 AM

Sam:

Please remember, as many have stated here, it does kinda make you wobbly at first. I was walking sideways for the first few hours. Just keep a night light on in case you have to get up during the night and although waking from a sleep, just keep it in the back of your mind to go lightly especially rising from laying down.

Linda
Tru

It is what it is...........

#16 cats

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Posted 02 May 2008 - 01:00 PM

I have taken lyrica 75 mg twice a day for 4 months ....it has been a big relief ...my pain is all but gone..I haven't had any side effects...it does help to start on a lower dose and work up.....Hope you find some relief