Posted 02 May 2008 - 11:30 AM
I'm definitely feeling low after that.
The endo thing was fine. There wasn't much trouble they could see, but the doctor stretched my esophagus to help with my trouble swallowing. At least it will hopefully help. If it doesn't then we have to do the other tests to see if it is motility issues.
I'm really bummed about the skin issue. I have swollen fingers in the morning, and later they look leathery. I thought the skin between my thumb and index finger was feeling tougher, but thought it could just be winter dry skin.
I guess I really need to see the rheumatologist again and see if he can refer me to the specialist in Madison WI.
Posted 02 May 2008 - 12:42 PM
Julie (Bird Lady)
Posted 02 May 2008 - 02:24 PM
Sorry you had a rough time at the endo appt. I know the feeling about seeing and feeling your skin hardening, it's one of the most scary things one can imagine. But remember there are cases where it's only on the hands and does not spread to the rest of the body. My knuckles look like elephant trunks. That was a hard one to accept, but I figure if it doesn't spread, I can live with that. I have noticed some skin changes on my chin but I am in denial about that and trying really hard not to focus on it. It's understandable that you feel down and out. My fingers also swell pretty bad. As my 15 year old nephew so eloquently put it "your fingers look like sausages!". Well its true, they do, but that's not the end of the world. Take it one step at a time and try to stay optomistic. I know it's easy to say, yet hard to do, but try your best. Anytime you want to talk, please feel free to shoot me a message.
Much love and warm squishy hugs!!!
Posted 03 May 2008 - 12:25 AM
I was really upset last night when I attempted to discuss this with my husband. He didn't seem to think it was any big deal. He even "tried to cheer me up" by joking. I wasn't in the mood for jokes.
Since I don't have a true diagnosis I'm not sure if he just thinks it is in my head? I got really angry because I've been trying to ignore problems for about a year now, and it is getting harder and harder to do that because the problems are more obvious to me. He seems to be in a form of denial which I can understand.
I'm glad I can come here and talk to people who know what I'm going through.
Posted 03 May 2008 - 04:45 AM
Good luck at your appointment and I hope it gets you some results.