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skin tightening process


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#1 luvbnmom3

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Posted 03 May 2008 - 11:29 AM

Do everyones symptoms come and go all the time, like, do you have pain in one hip for a while, then somewhere else, muscle weakness in the arms for a while, which subsides, vision problems, tendon issues; waking up with stiff achiles tendons in both legs for a while, etc.?

What a bout skin tightening? When it is somewhat insidious, as it gradually gets tighter, does it have days where it is worse, but gets better to some extent, for example, if I have to do something outside & my hands get too cold, the skin will get so tight that I can't open my hand all the way, or sometimes after washing my hands the skin is completely tight. My face feels like the skin is less "moveable" like when I rub my eyes, & sometimes if my face gets too cold, the skin is so stiff I can hardly squint my eyes enough, but it improves when my face warms up.

My doctor mentioned Sclero, since my hands keep getting tight, then the skin tears some on my knuckles. He says my whole body being freezing cold isn't the Raynaud's... anyone hear of that?

what is "induration"? Is that when the skin is less flexible, like you could poke it & it isn't soft & squishy?

#2 Karenlee

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Posted 03 May 2008 - 12:06 PM

Hi luvbnmom3,

Well since we all have different degrees of the condition it's hard to say, but I do beleive that Raynauds is normally confined to the fingers and toes.

Absolutely I do have tendon issues, very stiff in the morning, somewhat better as the day goes on.

Sclero would be tightening of the skin as you have described. Is this your primary doctor that mentioned the sclero? You may want to see someone that can evaluate you a bit more and run some tests. Maybe see a Rhumetologist if you haven't yet.

Good luck and please keep us posted.

Karen

#3 Bird Lady

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Posted 03 May 2008 - 01:58 PM

Hi Luvbnmom3, My symptoms really don't come and go so much. Something has to trigger the raynauds, like a cold room, or handling something cold from the refrigerator or going outside when it's cold. My skin seems to be pretty much the same all the time, however it is better now considering I just finished 12 months IV cytoxin in the SCOT study. Keep asking questions and we'll try our best to answer. Good luck, Birdman (what does Luvbnmom3 stand for?)
Hugs for All,

Julie (Bird Lady)

#4 Leslie R.

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Posted 03 May 2008 - 05:26 PM

Hello: I am newbie and was reading your post about tightening of the skin. I personally is experiencing tightness of my skin, around my neck and under my arms. The tightness does not have to do with Raynaud's because it deals with to much cologen or calcuim deposits is at that area. Raynaud's have to do with the cold and circulation of the blood vessels. I do experience that alot of times especially when it's cold, winter time or during visits at doctor's office. My hands, feet get very cold, stiff and the color changes to red white, this also leads to ulcerations on my fingertips. So you lose circulation of the blood and it feels numb at a time, also can be painful. I hope this information help.

#5 epasen

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Posted 03 May 2008 - 10:17 PM

Hiya luvbnmom3,

lately I've been noticing my skin getting tighter. This is actually very new to me, even that I've had linearic scleroderma since 1996. The skin has been tighter than normal skin for ages, but now it's different, it's progressing and I can notice it.

First I was confused and thought it was only my imagination, cause first the skin around my ankle got tight, but after a week it was actually better. Then it got tighter again. It's coming and going but yeah it's definitely progressing and getting a lot tighter. I'm just worried cause it's my ankle I'm talking about... I don't want to quit dancing and walking yet, I'm too young for that :P

Take care,
Emmi

#6 luvbnmom3

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Posted 07 May 2008 - 06:42 AM

Thank you for your responses. The tightening skin seems almost everywhere to me, like, my ankles, actually, ankles feel like the skin is thicker and I get what looks like edematous stripes across the front of my ankle when I wear socks, which seems so weird since my socks are not tight.

My skin on my abdomen must be thicker because sitting is uncomfortable like it was when I weighed 165, right now I am 125. In other words, when I was heavier... bending over & stuff was uncomfortable, my skin wouldn't "crease" as easily, once I lost all the weight, that was no longer an issue, now it is an issue but I'm no heavier. I feel the skin on my lower back pull tight when I bend over, and my calves often feel tight.

I thought maybe the doctor was right that it's probably raynaud's making hands tight except that I don't see Raynaud's attacks in the other places that are tight. What happens with my skin sounds just like what epasen says... coming & going but progressing at the same time. So in some ares, like my hands, the extent of tightness comes & goes but it is permanently tighter than it was a year ago.

I saw a rheumatologist about 2 years ago who did a full lab workup for autoimmune disease stuff. Just the RF was slightly positive & his report he sent to my primary (a different primary doctor at the time) says "possible occult connective tissue disease, although to date labratory workup is negative." Something like that.

He also said I had some "dilated and irregular" nailfold capillaries. Which, to my knowledge is not seen in primary Raynaud's... atleast everything I've ever read says that.

#7 Leslie R.

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Posted 07 May 2008 - 02:52 PM

Hello:

I do suffer with tightness especially on my neck, under my breast and under the arms. I was told from my dermatologist this is what Sceroderma does it attacks different part of the body. I did went to my dermatologist and he tried Photo-therapy to ease the tightness, but unfortunately it did not work. The first treatment I had a bad reaction so we had to stop, now he is stump and I have to live with this until someone find a better solution. As for Raynaud's I do suffer alot when it cold, I freeze up very quickly like a popsicle. So that too can be difficult to deal with and yes this is part of Scleroderma illness. I am going to purchase warmers for my hands and feet, they tend to work especially in winter. I wish you all the best and stay strong don't give up.

#8 barefut

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Posted 07 May 2008 - 06:04 PM

Does anyone's skin ever get like a bag of pudding? I can push on my skin in specific places and leave an indentation like pushing your finger into a bag of pudding. :huh:

#9 summer

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Posted 07 May 2008 - 06:37 PM

Hi Barefut,
I have that on my hands around the knuckles on my fingers, two of my fingers are slightly swollen, but around the knuckle area it is very baggy and wrinkled. If I clench my fists and put pressure and lean on the knuckles the skin stays indented, I have to try and move the skin back to normal.

Take care
Celia

#10 truman

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Posted 08 May 2008 - 12:46 AM

luv:

So many tell me to dress warm; wear mittens and socks. I can't, because I get those edema stripes as well and then it shuts off my circulation even more. Doesn't matter how loose they are, they always cut off the circulation causing me more problems.
Tru

It is what it is...........

#11 Karenlee

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Posted 08 May 2008 - 01:32 AM

Ced,

I get the same thing with indentations, especially on my hands. Like if I'm bringing a bag of heavy groceries in the house, when I put the bag down I have an indent where the bag handle was. Also ya know the pillow lines you get on your face when you wake up? Lol! They stay like that for quite a while, so it can be an hour later but looks like I just rolled out of bed :P

#12 Margaret

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Posted 08 May 2008 - 06:43 AM

<<Also ya know the pillow lines you get on your face when you wake up? Lol!>>

Karenlee~~~

Man....I get these, too, and I don't have Sclero!!! It's a bit embarrassing going to work in the early morning with this indented *mark* across your cheek!!!

Take care, Everyone.
Margaret

#13 luvbnmom3

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Posted 08 May 2008 - 04:58 PM

hey barefut, I SO get that pudding thing, like when I wash my daughter's hair I am on my knees by the tub & when I stand up there are major dents in my knees that last forever. On my eyebrows I can push one up with my finger & it'll stay, if I hang onto hangers with clothes on them for 5 or so minutes, I'll still have dnets in my fingers a few hours later.

Is that "pudding thing" a sclero thing? I haven't been diagnosed as having it, my doctor has mentioned it but about 2 years ago my ANA was neg. However, today I started feeling scared about it because last year my skin would feel tight once in a great while, but the last couple of weeks it has been everyday, all day & I've been sick to my stomach, my WBC's were low 4 weeks ago... don't know what that's about but the doctor said probably nothing, I wake up with bladder & hip pain that goes away after going to the bathroom, I'm SO tired....

I'm scared that if I do have sclero and it doesn't get diagnosed soon enough that more damage will be done to my insides that could've been prevented or slowed down you know? I mean, my lungs are a mess but I don't even know how to explain it to my doctor, whenever I get talking or reading outloud, after a couple of minutes I start smelling ammonia (it seems like because your breathing changes when you do a lot of talking (which is normal) that whatever accumulates in my lungs (the not normal part) & I smell ammonia...something like that) & often breathing some things makes me cough, like my lungs can't take the fumes... like a sucker, coffee grounds, etc., it isn't always the same, sometimes certain things bug me sometimes they don't... allergy tests were negative. Anyways... blah blah blah

Thanks for "listening" this turned into a vent for me.

#14 barefut

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Posted 08 May 2008 - 06:54 PM

luvbnmom3 ~

I have smelled that odor too! I wonder what that is all about?!

Please don't get into panic love. As long as you are staying educated and on top of new symptoms as they arise and letting your doctors know, you will catch anything as soon as it can be caught. Maybe it would make you feel better to see a sclero specialist? Do you see a rheumatologist?

Also, please know that any lung involvement, though it can sneak up on you, is a very slow process. My pulmnoary doctor suggested I taper off Cellcept and see him every 6 months. That worried me a bit, as in "What if I start sliding down hill without Cellcept?" and he assured me that any changes would take place very slowly and would be caught in a PFT every 6 months.

Please don't worry and you can "bla bla bla" here anytime! :lol: (you cracked me up - thanks for the laugh)

#15 smac0719

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Posted 10 May 2008 - 01:10 PM

My skin tightning was progressive and now it has kind of plateaued. It started on my arms and them moved to my legs and feet. I experienced some on my face and neck as well. Ther are some mornings where my neck feels tighter thatn others, but I don't notice much difference on my arms. That's where it's the worse.
I may have Scleroderma, but Scleroderma doesn't have me!