Hard to Move!
Posted 05 May 2008 - 04:04 AM
Yesterday, he told me that some mornings he just can't move very well and is in pain. He says it isn't really muscle pain, but just pain, and it is hard for him to get up and get moving.
He is on 12.5 mg methotrexate injections each week and takes folic acid and vitamins. He has raynaud's, but doesn't take medication for it.
Is this common for those of you with limited ssc?
Posted 05 May 2008 - 06:02 AM
But the fatigue he's experiencing, I think is pretty common. At least for me. I'm close to your son's age and some days, it's a chore to just get out of bed. One of the biggest things that has helped me get through college, etc, is to just know your limits and not push it too hard.
If I push for too hard, too long, I just crash and it's extremely difficult to recover after.
Posted 05 May 2008 - 09:34 AM
Part of the inflammatory arthritis I suffer is what is referred to as 'morning stiffness' but involves more than just stiffness, for as long as an hour each am. It may be that there is an inflammatory element to your son's illness as well. I also think it is worth mentioning to the doctor.
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Posted 05 May 2008 - 10:55 AM
There is a common, inexpensive blood test for inflammation called the Erythrocyte Sedimentation Rate (ESR or Sed Rate). Unfortunately it is non-specific (indicates inflammation from any source - flu, arthritis, cancer). This test can be very useful to determine if inflammation is going on - and inflammation can definitely leave you with pain and fatigue. The higher the numbers above normal, the worse you feel. I've experienced exactly the sort of issues your son has complained of.
I've become so accustomed that I can make a very good guess of my sed rate based on how I feel!
Posted 05 May 2008 - 02:32 PM
Hi Susie ,
You brought back some sorrowful memories of Gareth's senior year. It was all he could do to drag himself to school each day. He was diagnosed that Oct of his senior yr. Gareth got relief from Plaquenil last June. One thing I want to stress is autoimmune depression. We just discussed this with G's psych doctor......the same antibodies that attack the body cause the Seratonin levels to drop and depression can happen. Please keep that in the back of your mind should his 'love' of sports drop off completely.
Take care, Everyone.
Posted 05 May 2008 - 06:44 PM
Very good advice already from everyone - I can't add anything more except some good vibes your son's way. I know how he feels and 18 is way too young to feel 80.
Best wishes to him.
Posted 06 May 2008 - 06:51 AM
I'm 18, and I've had sclero since 1996. I've experienced pain on my shoulder blades, which isn't really muscular pain, but still really unpleasant and disturbing. But in my case, I don't really feel it when I'm exercising, or at least it gets a bit better anyway.