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Raynaud's Phenomenon


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#1 Leslie R.

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Posted 06 May 2008 - 05:26 AM

Hi since I have Scleroderma my experience with Raynaud's Phenomenon has been difficult for me. Both of my hands and feet get very cold fast, and cause me to develop ulcers on my fingers. At this time I have bandage up my fingers and put antibacterial ointment on them. But it not helping because my hands have to be in water lots of time during the day. Is anyone out there have the same problem, and what are doing about it?



Sincerely,
Leslie R

#2 Karenlee

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Posted 06 May 2008 - 06:36 AM

Leslie,

Sorry to hear you are suffering with your hands, I fully understand what you are going thru. My fingers/cuticles were constantly infected and I had bandages, creams, peroxide, etc. The whole gamut. Some tips that have helped me:

1. If you have to have your hands in water, use rubber gloves. I go thru a pair a week, but it's certainly worth it.
2. Keep you cuticles soft with a cuticle salve so they don't crack. That's the main culprit in getting the infections, so prevention is key. I have found one that works wonders (havent had an infection in weeks) so if you'd like the name, just send me a pm.
3. My dermatologist prescribed Alcortin A to rub in and around the cuticles, it prevents bacterial and fungal infections from developing and kills any bacteria that may have already gotten in.

Hope this is of some help. Keep your hands soft and dry as much as possible.

Karen

#3 omaeva

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Posted 06 May 2008 - 07:03 AM

Leslie,

Are you on medication for the Raynauds? When I went on medication a month or so ago, it's helped (almost) heal some ulcers I had for years. And I always keep lotion on me at all times, because even washing my hands after using the restroom does a number on my skin.

#4 Bird Lady

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Posted 06 May 2008 - 07:07 AM

Hi Leslie, My doctor gave me a prescription for a steroid cream for my fingers and it seems to keep the ulcers under control. Sometimes if they get really bad I apply the cream and and wear a glove on that hand overnight. This seems to really help. Good luck, Birdman
Hugs for All,

Julie (Bird Lady)

#5 CraigR

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Posted 06 May 2008 - 10:48 AM

There are many useful medications that can help Raynaud's by increasing peripheral circulation. It does not sound as though you are using any of these. Revatio (Viagra), Cialis, Nifepine (Adalat, and other calcium channel blockers), Prazosin, Nitro cream, and others have all helped users on this sight. Different drugs work for different people. Your suffering might be greatly reduced. Check out this website for members' experience. I was greatly helped by Adalat and Prazosin when going through a bad time when all my fingers were bandaged with ulcers.

Craig

#6 Leslie R.

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Posted 07 May 2008 - 10:26 AM

Hi Karen,

Thanks for the advice I now starting to use gloves, and will be going to see the dermatologist next Wednesday, I will ask him about the cream you mention. Thanks again.

#7 Leslie R.

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Posted 07 May 2008 - 10:32 AM

Hi Omaeva,

I have been using Nefediphine for my Raynaud's but it only help a little. You see I have not only Scleroderma, but Lupus and Vitiligo too. I am under 13 medications, 10 are prescribed and Vitamins and Iron over the counter. So all I can do for the time is to keep warm wearing gloves, scarfs and coat. Lotions help to keep my hands moist but when my hands frozen, it can be diificult time for me to get warm.

#8 Leslie R.

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Posted 07 May 2008 - 10:34 AM

Hi Birdman,

I will definately ask about the steroid cream, but my doctor might not want to take any chances with steroid creams, due to my other conditions. But it worth trying to get some relieve, thanks for the information and advice.

#9 Leslie R.

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Posted 07 May 2008 - 10:37 AM

Hi Craig,

I will also let my doctor know about the medications, believe me any information I get is very helpful thank you. I hope my doctor will find some solution for me, I already have problems with my tightening of my skin. The doctor try to help me by using photo-therapy, and that back fire on me. So now he is basically stump so hope he can do something about this problem. Thanks again.

#10 CraigR

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Posted 08 May 2008 - 09:27 AM

Leslie,

My rheumatologist had me on Nifedepine only - and I did an internet search of "vasodilators" and took the list to her! -asked her which of these we might try, and got my prescription for Prazosin. Sometimes you just have to take over. The doctors don't "feel your pain" (like some phoney politicians), so they often aren't as motivated.

Craig

#11 bookworm

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Posted 08 May 2008 - 10:06 AM

Hi Leslie,
I took Nifedipine for awhile and it didn't seem to help at all, and neither did the various creams and pills I tried, including Norvasc. I didn't get relief from finger ulcers until my doctor put me on Viagra (Revatio) and later changed that to Cialis. All of these work wonders. Ask your doctor if you can take one of them!!!! They all help the blood to get to the finger tips.

Mary in Texas