Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!



  • Please log in to reply
23 replies to this topic

#21 barefut


    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 07 May 2008 - 06:10 PM


Did you ever think you'd be opening up such a can of worms? :lol:

This is one of the longest threads ever!

By the way, I was browsing the photo albums and saw your pictures of Gareth - What a totally handsome guy!

#22 CFMBabs


    Silver Member

  • Bloggers
  • PipPipPipPip
  • 180 posts
  • Location:England

Posted 07 May 2008 - 08:01 PM

Let's call it something new! BOY This Maurice (Raynaud) guy sure has something to be guilty of -- fancy naming something like this after his unpronouncable name, tut, tut!

In England we should call it Rain hard, because that's all it ever does!
I once heard it rather amusingly referred to as Rhinocerous disease! A lady I was in hospital with told her relatives. MMmm, my skin may be a bit tight but I ain't got the tusk yet!

We should call it candle fingers (white candle) or Icicle syndrome -- what do you think, LOL?

As ever. Best wishes
Barbara xxx

#23 truman


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 08 May 2008 - 12:38 AM

How about cold hands, warm heart disease? :)

It is what it is...........

#24 jefa


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 08 May 2008 - 02:54 AM

There must be something to that old chestnut, Tru... the hearts around here seem to be as warm as a furnace. :D
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)