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Telangiectasia (T-spots)

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#1 Snowbird


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Posted 08 May 2008 - 01:09 PM

Hi all

Curious, is there any consensus on whether or not the T-spots are a sign of progression in this disease??

Sending good wishes your way!

#2 oneuncoolmom


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Posted 08 May 2008 - 08:12 PM

I've had the disease for about 8 years and my t-spots have stayed about the same---maybe a couple of new ones on my face and hands, but no dramatic increase. Have yours increased alot?

Good luck,
One uncool mom

#3 annkd


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Posted 09 May 2008 - 05:49 AM

Hi Snowbird - I have had my spots for over 10 years. The ones on my lips occasionally bleed and I need laser treatments, and just recently the one of my finger started to bleed. Go figure. I get new ones every couple of months. I have alot! My symptoms have been slowly progressing. I have no idea if the increase in t-spots are an indication of a progression. My rheumatologist doesn't know. I'm curious as well. -Ann

#4 Snowbird


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Posted 09 May 2008 - 10:56 AM

Thanks everybody...I don't know either.

I am getting more of them on my face lately, I had them on my chest for years (didn't know what they were at the time and never ever thought to ask, didn't know I had this disease then either). They're getting bigger now (some are more like splotches than spots) and a brighter red colour now too. I just wondered if it had to do with the progression. Mine still keep coming and going alot, they might stay for a few days or overnight for the party and then they disappear...I've had a few stay and take up residence. Thanks for asking!
Sending good wishes your way!

#5 Guest_Sadie_*

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Posted 09 May 2008 - 11:56 AM

I have quite a few myself. I've had Scleroderma 18 years now. I didn't have them till about 4 or 5 years ago.

#6 Sweet


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Posted 09 May 2008 - 12:34 PM

I don't know if I would say it a sign of progression, but just one of the symptoms most of us can expect.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)