port a cath device
Posted 08 May 2008 - 01:32 PM
Posted 08 May 2008 - 10:02 PM
Sorry to hear you are going through this, it is certainly a very challenging sympton of this disease to experience and not easily solved.
Ive had a port-a-cath in for a year now. I have GAVE too, quite severe. I have a blood test fortnightly, and the odd iron infusion. I just came home tonight from a 5 day course of an Illoprost infusion. Ive had over 20 blood transfusions in the last year whilst trying to treat the GAVE. Unfortunately after 8 laser treatments on the stomach, it still isnt cured. I have another lot in 3 weeks. I love my port for convenience sake and ease of pain, the veins in my arms are pretty much stuffed now, and I highly recommend one for anyone in this situation. I take it, you are looking at having one inserted. I have alot of skin involvement too and have had no issues with healing. I hope this helps
Posted 09 May 2008 - 01:22 AM
I had the same problems as you. No veins, once while I was having a heart attack, it took them 2 hours and 12 tries of trying to start an IV, they finally did a central line. So, now that I need weekly iron infusions I have a port.
Getting it put in wasn't bad, about 15 minutes, some pain with the numbing needles, a little sore with healing and no problem healing. They actually used it the very next day. It's not the most beautiful thing, and seems obvious to me, but really unless I point it out, no one notices it. As far as using it, it's the best! Blood tests which used to be a nightmare are a breeze and they get vials full in under a minute. The infusions are likewise, easy as pie. Have no fears, a port is a good thing! Good luck.
Posted 09 May 2008 - 06:08 AM
Julie (Bird Lady)
Posted 09 May 2008 - 06:37 AM
I had my done in out-patient surgery and I just had my second round of IVIG treatments for 3 days in the hospital. It is so nice for the nurses and myself in using that and not have to go through the hassle. I hate when they "fish" around for the vein as mine will be there and then will disappear and they fish and fish. It ends up being so painful and after 3 trys by one nurse they have to call in another nurse, and so on and so on. If you are the same way then I would recommend you to go ahead and get one. I still have a little soreness and pain but it isn't bad.
Posted 09 May 2008 - 10:44 AM